Making waves and making change

I have been incredibly busy these past couple weeks. I spoke at an online advocacy convention on September 26th, reflecting on my experiences in the education system. I wanted to focus on the fact that I, someone who dropped out in 11th grade and ended up getting my GED, was still able to be successful and thrive. I wanted the parents who were participating to understand that their child’s success in the school system will not necessary determine their success in the future. Not everyone thrives in a regimented system.

Then, on September 30th, I spoke at the BC Legislatures Provincial Budget meeting (at the 02:05 – Two hour and five minute mark) https://twitter.com/BCLegislature/status/1443671164690173960 in regards to being a disabled person and a small business owner. I spoke about being self-employed and the lack of support and was asked by one of our MLAs to submit a letter. I just wrote it and emailed it off.

I’m so passionate about highlighting our voices because we are left out of the narrative. The press releases for September’s British Columbia DisabilIty Employment month didn’t include one quote from disabled small business owners or self employed people. It just included quotes from people who hire us. It’s frustrating to know that there are folks out there who didn’t even know we exist and thus, by default, didn’t choose to include us in this very important conversation.

I wrote two articles as well, one here in regards to inclusive employment and being self employed and one here about disability and entrepreneurship.

I also want to share that i’m almost completely sold out of my Neurodiversity Pride Pins in the regular size. At the time of posting this, I only have 11 left. That means i’ve sold nearly 200. I have more on the way in the upcoming weeks but if they do sell out, I also have the mini, 1 inch version available.

Did you know that I released a new style of pin?

This is my “Flower Power” collection! I also have matching stickers and patches will be arriving October 4th. You can find these items at retrophiliac.etsy.com, alongside many other items I have available. Every time a purchase is made, it further ensures that I am able to live my dreams and hopefully be given the chance to help other people who want to be on the same path of independence that I am on.

I also secured my 10th retailer! I am grateful that I reached this amazing milestone, alongside other milestones to celebrate:

-Over 500 sales this year alone

-Over 1000 sales in total

-Over 200 five star reviews

And, I also celebrated my 33rd birthday and felt more accomplished than ever.

Now, to fight the good fight and continue advocating for disabled small business owners and self employed people. I’m not going to stop, i’m just going to keep pushing forward! Thank you for navigating this journey with me.

-Margaux

What’s new?

I have a mish-mash of updates.

First up: Accessible Employers has been avoiding me for a few weeks now. I do think I found them mentioned in a government budget report article. It seems like they are still being very hesitant to be open about their budget. Which means one thing: They are a FOR-PROFIT BUSINESS. If they were a non-profit, they’d be on the charity database websites and would have to disclose their financial reports.

Secondly: I was a vendor at a market on the weekend and I was so excited to connect with new people and make a few sales.

Photo by Aleywey on instagram

I also was interviewed by Rachel and Hiiro from the Getting Jewcy Podcast. We had so much fun chatting and I was so thankful I got to speak about things that i’ve been talking about on this blog, too.

I also released a few new designs in my shop:

These can be found at www.etsy.com/shop/retrophiliac.

I’m also speaking tomorrow (July 19th) for BCPF’s panel on housing and more information can be found here: https://bcpeoplefirst.com/events

That’s all for now!

The (Perceived) Exploitation of Disabled People

(This is an OPINION PIECE. These are words that are from my brain and are not necessarily going to be shared by all.)

Being disabled is something I have experienced for my entire life. This is not something I can decide to opt out of.

I’ve done my absolute best with attempting to sustain myself, finding unconventional ways to fund my creative endeavours. I’ve expanded my etsy shops return on investment by approximately 224% over last year.

This has not been easy. All the local, provincial and federal or country-wide resources I have reached out to have sent me in a perpetual circle, each referring me back to the folks who have referred me to them. This has created a sense of frustration and has made me aware of how inaccessible resources are for disabled folks who have chosen to work for themselves.

The one program that is available is through Community Futures BC and it is called the Entrepreneurial Development Program for Persons With Disabilities (which is outdated language). From what i have seen, these programs are reliant on their disabled clients taking out business loans.

Expecting a disabled person to take out any kind of debt does not make sense. I am unsure why the Western Economic Diversification branch of the Government of Canada would put their name behind a program when they already are very careful (and somewhat protective with their funds) about folks who receive any kind of social assistance or disability. They have admitted to handing out grants for other programs, so they should be aware of the huge financial risk they are supporting. Disabled people are already at risk in so many other ways that I can’t begin to wrap my head around the fact that they are so comfortable promoting debt.

Clearly, the programs that are promoting that kind of debt are receiving program-specific funding from the government. If the programs receive money that, chances are, they are not expected to repay – then why is it a good idea to make marginalized people take on financial debt when the end goal is to be financially independent? Our lives are fragile. Anything could happen to us. Would we really want out families or next of kin to be financially responsible for the debt we may not be able to pay back? I certainly would not feel comfortable with that amount of stress and expectation looming over me for years.

This is a huge problem that needs to change.

Which brings me to my next point and some opinions I would like to share about an organization called Accessible Employers.

I have emailed nearly all of the members of their President’s Group on Friday, July 2nd 2021 and, at the time of this post – I have not heard back from them. I also have emailed them multiple times to the email address listed on their website and also have received complete silence.

My introduction to their organization was through someone who had heard me speak for an engagement that I was hired for. He seemed impressed and said that he thought that there might be a way that Accessible Employers and I could partner or collaborate. I was excited – until I wasn’t.

I already had been completely gaslit and deflected upon in a conversation I shared with Lisa, the owner of a local bakery called Gabi & Jules whose entire marketing tactic relies on the owner having an Autistic child. She claims that she strives to hire inclusively. This all might sound lovely and wonderful, but it’s not.

Here’s why:

Firstly, Lisa is 2nd in command of Accessible Employers. She, and the 24 or 25 other people who sit on the Presidents Group, are (from what I can tell) not disabled themselves.

Secondly, Lisa uses the puzzle piece in her shelf talkers for her bakery goods, her boxes (which she ordered more of – quite a while after I attempted to kindly educate her on how hateful this imagery is – and when she responded to me, she made it sound like it was an opinion of mine and not a fact), her vinyl wrapped vehicles, her awnings and much more. Her website’s inclusivity and autism portion uses plenty of puzzle pieces, as well as uncomfortable language like “…..we have seen the beauty and kindness that comes from seeing abilities rather than disabilities.” which essentially creates a negative and harmful dialogue around disabilities. Being disabled is NOT a bad thing. Using language like this is.

Thirdly, the videos used on Accessible Employers to talk about their organization features their business-clad members discussing the benefits of the organization.

https://www.youtube.com/watch?v=EPlg6N-N3BU

The exploitative language used contains words like “bottom-line” when asked about the benefits of hiring disabled people. It’s actually incredibly cringy to watch and I haven’t even outlined all the things wrong with it.

There are more videos, such as the one for Gabi and Jules, which again, features the tokenization of Autistic people, outdated language including functioning labels, talking about disabled folks in an almost ‘manic pixie dream girl’ way – as if to say that we are some kind of subservient entity whose job it is to submit to these participating businesses and make them more money.

If it sounds like i’m making this up, the information on the landing page of accessible employers actually has language like “90% of consumers prefer companies that employ people with disabilities.” and “Embracing an accessible and inclusive workplace is just good business.”

As businesses in Canada are not allowed to discriminate or play favourites when it comes to those they choose to hire, Accessible Employers has figured out a way to operate in a grey zone.

I would like to know what kind of entity they function as. Are they a non-profit? A charity? Where are their financial statements? What kind of government kickbacks and incentives are they receiving for each disabled person they hire? Why is there not a single disabled person on their board? Why are the founders not choosing to reinvest any of the additional income they are creating to actually empower individual disabled people to work for themselves?

Chances are: They don’t feel like any of this is their responsibility. They probably don’t feel like they need to disclose any of their financial statements or that no one is going to hold them accountable for using and enabling ableist language and the blatant exploitation of their entire organization’s structure which is UTILIZING DISABLED PEOPLE TO BE MORE PROFITABLE. Also, I have not seen anything about increasing minimum wage, paying their employees more or giving them any kind of additional benefits. It becomes more obvious to me who is actually benefitting by this organization or business.

At one point, I was contacted to write for them and in exchange they would allow me to promote my ND Enamel Pin and it sounded like they were not going to pay me, either. I told them that autism “awareness” (which is the language that they used) is not a narrative that Autistic people are in charge of. I told them my Neurodiversity pride pin was NOT just for Autism (which they inappropriately assumed it was, calling it my “Autism Pin”), and because I spoke up and corrected them, they essentially rescinded the offer. This could have been the perfect chance to learn something new. They also could have considered discussing this further. It was a great opportunity to learn from me, someone who is part of the disabled demographic they are supposedly serving or being served by.

Ironically enough, they did post a tweet using acceptance over awareness.

This interaction (the proposed writing gig) was the first for me and it highlighted their inability to listen to disabled people, admit their wrongdoings and promise to create change – which Lisa Beecroft echoed when she REFUSED to take responsibility for utilizing puzzle pieces for her business. One thing is for sure, their inability to listen to disabled people is consistent throughout the organization or my two interactions i’ve had with them.

Why is it so hard to accept that disabled people have a voice? Why is it so difficult to understand that we are not just subservient, malleable pawns that can be shaped to serve their bottom line?

Changes need to be made. They need to be held accountable and they have the ability to be pioneers in this space. If inclusion is what they strive for, they need to put their money where their mouth is and create REAL positive social change instead of co-opting the voices of a community that they aren’t even part of. They are not living the disabled experience first hand and understanding why our voices need to be added to this conversation is the first step.

More good things!

I have some exciting news to announce.

Not only was I a recipient of a BC Arts Council grant – which means I have the ability to create more awesome things, but my local MLA (Member of the legislative assembly) Rick Glumac spoke about me at the British Columbia Legislature in Victoria.

Here’s the video!

I am so grateful that my hard work was acknowledged and that he spoke up about the puzzle piece, awareness vs acceptance and used my correct pronouns.

I also wanted to announce that not only was I an independent consultant for York Universities Mental Health Literacy for Autism, but I am so pleased to show you that they chose to use my “Love Grows” image on the cover as you can see here.

If you like this design, I actually sell pins, patches and stickers with it in my etsy store!

I’ve also contributed to a few “Nothing with out us” segments on CBC’s “on the coast with Gloria Macarenko”, and i’m incredibly thankful that I have been given this opportunity.

I’ve been keeping myself as busy as possible and I will have many new items that i’ll be releasing soon and I even got my first dose of the covid-19 vaccine. I’ve been working on keeping myself hydrated and my mind in a more positive state. It’s a challenge though and I can’t wait until my family, friends and roommates are fully vaccinated.

I really can’t wait to share more good things with you.

Thank you so much for supporting me and reading.

Mortgage Tree does it again.

I had reached out to Mortgage Tree in the past to provide them with feedback about how terrible their campaign was.

I’ve already written extensively and provided a free guide for businesses to understand how to navigate these treatorous waters, but they actively choose not to listen.

They blocked me after this.

I created a video and a long blog post about all the things that happened.

The original writing from 2019

They made a plethora of excuses and essentially negated my voice and all the feedback that I had for them. Seems like they’ve continued on this campaign and also have continued to hire a NON-AUTISTIC artist (from what it seems) to create a colouring book page for them.

It’s exhausting to provide feedback to give them the chance to change and do better, but instead they choose not to do this.

If you want to see what they have done with their campaign and reach out to them, here’s where you can go:

The businesses involved:

Achievements!

I have been working hard to reach more milestones and I want to announce that I met my 500 sales goal and I have exceeded it. I have had so many orders go out lately and it’s keeping me exceptionally busy, which I am so grateful for. I am reminded of how I am living a dream i’ve always had, and that’s always been to sell my own merchandise. I try to ensure that I also write hand written notes to each customer.

Look at all these packages I sent out! This wasn’t even all of them.

Another goal that was reached was that the Made by Autistics Community is now well over 3,000 members strong. How incredible is this? I saw a desperate need for a group for Autistic creatives out of frustration I had. Every time I just wanted to SHOWCASE my specific cat-related art, I would head in to cat groups and people would ask me if I was selling or they’d tell me no selling was allowed, when all I wanted to do was showcase my art! That also lead me to creating the Made by Autistics Marketplace to fill that need. Both these groups work well with each other. Sometimes there’s a few bumps in the road, but I do my best.

Recently my artwork was licensed for a very special project so when that’s all finalized, i’m very eager to share. I also have a speaking engagement coming up as well so i’m stoked for that.

I was also featured on the Tri-City News and Vancouver Is Awesome! I would love if you could check out the article (they are the same on both sites) and share with your friends. I also posted about it on the Vancouver sub reddit and it’s created a really interesting discussion.

So, with all that being said: i’ve been very busy, my 6th enamel pin is currently in production, I am going to be creating so many more things and i’m not stopping anytime soon!

P.S. My sister and her bandmate released a brand new song, i’d be so jazzed if you could watch it and follow them on twitter and facebook.

It’s AUTISM ACCEPTANCE DAY!

Today is the day where we reject Autism Speaks. We don’t light it up blue, we don’t say “Autism Awareness” because to be aware of something doesn’t mean you accept it.

Instead, choose to support Autistic people. Choose to support those around you instead of a large organization who are money hungry, have a genetic database, and use incredibly harmful imagery such as the puzzle piece.

I don’t need to feel like i’m broken, missing part of myself or needing some kind of solving.

The things I have personally done that i’m proud of (when imposter syndrome doesn’t rear it’s ugly head):

-Contributing to an important Autism guide (more info to come)

-Running Made by Autistics Community & Made by Autistics Marketplace on Facebook

-Creating a Neurodiversity and Autism merchandise collection on my etsy store

-Speaking up on various media channels

-Creating a dialogue and educating people against the harms of the puzzle pieces

-Having a podcast

-Having a youtube channel

-Bridging the gap between my art and Autism to open up the dialogue of what Autistic people are capable of and reducing stigmas

I feel like there’s so many things that Autistic people have accomplished, but instead these large organizations, who tend to weaponize “Autism Moms” against Autistic Adults, choose to continue to make life even harder for Autistic people.

If you’re Autistic, what are the things you are most proud of accomplishing?

If you’re not Autistic, do you have any questions for me?

Also, I wanted to add that I am having a contest for my Neurodiversity & Autism merchandise over at the Made by Autistics Marketplace on facebook and if you’re feeling like joining and entering, I would truly be very jazzed about it!

Relevant blogs i’ve written:

Neurodiversity Pride

The Neurodiversity Pride collection was created in part with funding received from the BC Arts Council and the generosity of the Wosk Foundation in the awarding of this grant.

artscouncil-bcid-lockup-rgb-pos-1

10% of each item sold will be donated to a few cat related charities of my choosing.

(My first set of donations were made to Autistics United Canada.)

My Enamel Pins

I am so proud to announce my newest pin design “Smiling Sun”, I can’t believe i’m up to five designs so far. This has always been a huge dream of mine and even though I haven’t sold a single sun pin yet, I feel like i’m trying to remain positive and set myself up for future successes.

I am hoping that, once Covid is a thing of a past (will that even happen?) that I will be able to participate in small festivals in Vancouver. I really think that these pins would be a huge hit.

There are many plans for the future, such as cute cat pins that I can create for charitable purposes. I have applied for some grants so fingers crossed I can get some more funding.

It also seems like the interest in my original art has completely dwindled and that the things that are selling well for me are my Neurodiversity Pride collection, my LGBTQ2+ collection, my Childfree enamel pins & my Autism identity enamel pins.

I try to remind myself that even though the interest in my merchandise and offerings has changed, that i’m still able to create whatever I want and bring more acceptance towards the Autistic community.

Here I am, wearing my Smiling Sun pin and I have themed my entire outfit based on the colours of the pins.

If you want to support me, please check out www.etsy.com/shop/retrophiliac and please share it with your friends. I thrive on word of mouth!

Etsy MILESTONE!

I’m so excited to announce that i’ve reached and exceeded 400 sales in my etsy store.

Photo by Anna-Louise on Pexels.com

This is HUGE! Each and every sale I get helps me support myself and continue to reinvest in to getting more items made. I have enamel pins being manufactured right now and the hope is to have them released by the beginning of March.

I also have a lot of new and gently used clothing to list on my depop, poshmark and ebay accounts. I’m really branching out and finding different revenue streams. It also DEFINITELY ensures that I am never bored.

Now that I got a formal OCD diagnosis, it explains why I have routines and clean obsessively. I feel like I understand myself a lot better.

I have been updating my TIKTOK account very frequently, so I hope you follow me over there. I’d love to interact with you. We could be mutuals?

All the best,

Margaux