The (Perceived) Exploitation of Disabled People

(This is an OPINION PIECE. These are words that are from my brain and are not necessarily going to be shared by all.)

Being disabled is something I have experienced for my entire life. This is not something I can decide to opt out of.

I’ve done my absolute best with attempting to sustain myself, finding unconventional ways to fund my creative endeavours. I’ve expanded my etsy shops return on investment by approximately 224% over last year.

This has not been easy. All the local, provincial and federal or country-wide resources I have reached out to have sent me in a perpetual circle, each referring me back to the folks who have referred me to them. This has created a sense of frustration and has made me aware of how inaccessible resources are for disabled folks who have chosen to work for themselves.

The one program that is available is through Community Futures BC and it is called the Entrepreneurial Development Program for Persons With Disabilities (which is outdated language). From what i have seen, these programs are reliant on their disabled clients taking out business loans.

Expecting a disabled person to take out any kind of debt does not make sense. I am unsure why the Western Economic Diversification branch of the Government of Canada would put their name behind a program when they already are very careful (and somewhat protective with their funds) about folks who receive any kind of social assistance or disability. They have admitted to handing out grants for other programs, so they should be aware of the huge financial risk they are supporting. Disabled people are already at risk in so many other ways that I can’t begin to wrap my head around the fact that they are so comfortable promoting debt.

Clearly, the programs that are promoting that kind of debt are receiving program-specific funding from the government. If the programs receive money that, chances are, they are not expected to repay – then why is it a good idea to make marginalized people take on financial debt when the end goal is to be financially independent? Our lives are fragile. Anything could happen to us. Would we really want out families or next of kin to be financially responsible for the debt we may not be able to pay back? I certainly would not feel comfortable with that amount of stress and expectation looming over me for years.

This is a huge problem that needs to change.

Which brings me to my next point and some opinions I would like to share about an organization called Accessible Employers.

I have emailed nearly all of the members of their President’s Group on Friday, July 2nd 2021 and, at the time of this post – I have not heard back from them. I also have emailed them multiple times to the email address listed on their website and also have received complete silence.

My introduction to their organization was through someone who had heard me speak for an engagement that I was hired for. He seemed impressed and said that he thought that there might be a way that Accessible Employers and I could partner or collaborate. I was excited – until I wasn’t.

I already had been completely gaslit and deflected upon in a conversation I shared with Lisa, the owner of a local bakery called Gabi & Jules whose entire marketing tactic relies on the owner having an Autistic child. She claims that she strives to hire inclusively. This all might sound lovely and wonderful, but it’s not.

Here’s why:

Firstly, Lisa is 2nd in command of Accessible Employers. She, and the 24 or 25 other people who sit on the Presidents Group, are (from what I can tell) not disabled themselves.

Secondly, Lisa uses the puzzle piece in her shelf talkers for her bakery goods, her boxes (which she ordered more of – quite a while after I attempted to kindly educate her on how hateful this imagery is – and when she responded to me, she made it sound like it was an opinion of mine and not a fact), her vinyl wrapped vehicles, her awnings and much more. Her website’s inclusivity and autism portion uses plenty of puzzle pieces, as well as uncomfortable language like “…..we have seen the beauty and kindness that comes from seeing abilities rather than disabilities.” which essentially creates a negative and harmful dialogue around disabilities. Being disabled is NOT a bad thing. Using language like this is.

Thirdly, the videos used on Accessible Employers to talk about their organization features their business-clad members discussing the benefits of the organization.

https://www.youtube.com/watch?v=EPlg6N-N3BU

The exploitative language used contains words like “bottom-line” when asked about the benefits of hiring disabled people. It’s actually incredibly cringy to watch and I haven’t even outlined all the things wrong with it.

There are more videos, such as the one for Gabi and Jules, which again, features the tokenization of Autistic people, outdated language including functioning labels, talking about disabled folks in an almost ‘manic pixie dream girl’ way – as if to say that we are some kind of subservient entity whose job it is to submit to these participating businesses and make them more money.

If it sounds like i’m making this up, the information on the landing page of accessible employers actually has language like “90% of consumers prefer companies that employ people with disabilities.” and “Embracing an accessible and inclusive workplace is just good business.”

As businesses in Canada are not allowed to discriminate or play favourites when it comes to those they choose to hire, Accessible Employers has figured out a way to operate in a grey zone.

I would like to know what kind of entity they function as. Are they a non-profit? A charity? Where are their financial statements? What kind of government kickbacks and incentives are they receiving for each disabled person they hire? Why is there not a single disabled person on their board? Why are the founders not choosing to reinvest any of the additional income they are creating to actually empower individual disabled people to work for themselves?

Chances are: They don’t feel like any of this is their responsibility. They probably don’t feel like they need to disclose any of their financial statements or that no one is going to hold them accountable for using and enabling ableist language and the blatant exploitation of their entire organization’s structure which is UTILIZING DISABLED PEOPLE TO BE MORE PROFITABLE. Also, I have not seen anything about increasing minimum wage, paying their employees more or giving them any kind of additional benefits. It becomes more obvious to me who is actually benefitting by this organization or business.

At one point, I was contacted to write for them and in exchange they would allow me to promote my ND Enamel Pin and it sounded like they were not going to pay me, either. I told them that autism “awareness” (which is the language that they used) is not a narrative that Autistic people are in charge of. I told them my Neurodiversity pride pin was NOT just for Autism (which they inappropriately assumed it was, calling it my “Autism Pin”), and because I spoke up and corrected them, they essentially rescinded the offer. This could have been the perfect chance to learn something new. They also could have considered discussing this further. It was a great opportunity to learn from me, someone who is part of the disabled demographic they are supposedly serving or being served by.

Ironically enough, they did post a tweet using acceptance over awareness.

This interaction (the proposed writing gig) was the first for me and it highlighted their inability to listen to disabled people, admit their wrongdoings and promise to create change – which Lisa Beecroft echoed when she REFUSED to take responsibility for utilizing puzzle pieces for her business. One thing is for sure, their inability to listen to disabled people is consistent throughout the organization or my two interactions i’ve had with them.

Why is it so hard to accept that disabled people have a voice? Why is it so difficult to understand that we are not just subservient, malleable pawns that can be shaped to serve their bottom line?

Changes need to be made. They need to be held accountable and they have the ability to be pioneers in this space. If inclusion is what they strive for, they need to put their money where their mouth is and create REAL positive social change instead of co-opting the voices of a community that they aren’t even part of. They are not living the disabled experience first hand and understanding why our voices need to be added to this conversation is the first step.

“…And it’s preying on my mind

…That there’s nothing left in my hands but time
Time don’t really care if I carry on.”

I have a few things on my mind so I figured it would be important to get it all out in the open.

Sometimes people send me an image pertaining to Autism with the best of intentions and yet the imagery is so widespread that the notion of it being offensive fails to cross the mind of the person sharing it. I do my best to write about these things in my blog but not everyone takes the time to read my articles. 

I was sent an image of hands in a handshake position that had one of the hands being disgustingly adorned by a rainbow of interlocking puzzle pieces with words like “awareness” placed over top of the neutral/skin-toned hand. 

Autism Daily Newscast

Immediately, a wave of frustration with a dash of anger washed over me. I thought I had made it very clear how I felt about these words and images used. I had even posted this image a day prior:

I had responded with a numbered list of how generally we (Autistics) don’t like skin to skin contact, that the puzzle piece is offensive and that we do not need awareness. I also linked an article titled “the ableist history of the puzzle piece”. The response I got surprised me. It was not taken well. I had to explain that Autistic people are generally fact based and that my attempt to educate had no malicious intention.

I can not sit idly by and not say anything- that just isn’t in my nature. 

On another note, I am in the process of updating my sales terms on Etsy in as many places as possible.

I am not sure how many people know about print on demand but it is a service that I utilize for the majority of my offerings.

Here’s how it works:

I upload my artwork to their website and I configure it on a number of products. The website creates a very realistic looking digital mock up of said item. I add the price, edit the description and list it on my Etsy store. The item will say “ships out of the United States” or sometimes China, depending on where it is manufactured. 

I would say that 95% of my customers live in the USA. It didn’t occur to me that “ships out of the United States” is not enough information in regards to duty. 

I purchase a lot of things from online American retailers and I also live near the British Columbia / Washington state border. Duty is something I always consider and take in to account. I have even been sent promotional items for review and had duty slapped on.

I will be adding “This item ships out of the USA. I am not responsible for duties, shipping and exchange rate incurred” on each listing. I have nearly gone through two out of five pages of listings so far. My laptop can’t handle it. 

I also need to express that some people have perhaps attempted to reach out to me through various channels and I am not always quick to respond. This is because I am still going through a lot of personal things and I am doing my best to prioritize. However, I am under a significant amount of stress and I am having a very difficult time viewing things accurately because of how clouded my thought process is. Anxiety is not easy to deal with.

I am doing my very best and trying to cope in a way that I am still able to be productive. I just need a bit of room to breathe. 

New Art & Featured on Art of Autism!

Here’s another one of those random updates with a couple things to touch on. I also wanted to thank all my new visitors! Hi!

I created a new piece of art called “Disillusion fragmentized”:

And, I was featured on The Art of Autism!

Laurie Guerra has stepped down.

Here is the official statement issued by AutismBC

NO one is taking accountability for Laurie Guerra’s actions.

Read below as I dissect each paragraph and give my own personal opinion on what has been said.

Continue reading

Featured in The Peace Arch News & Cloverdale Reporter!

Read the article here https://www.peacearchnews.com/community/cloverdale-artist-finds-activism-for-autism-through-painting/

Consumer VS. Corporation

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Blogging can be joyful but it can also be incredibly disheartening, frustrating and full of defeat (yes, i’ve mentioned this plenty of times before).

I owe a lot of gratitude to the companies that have been kind enough to work with me, not because of a ROI but because they genuinely care about my opinion and the content I create.

If you are a large corporation worth billions of dollars and you decide to run an “Autism at Work” program, employing autistic individuals and running seminars/talks with lots of press material and attendance, it’s in your very best interest to make sure that everyone is on the same page.

What do I mean by this?

Your PR company should know better than to use the terminology “with autism”, they should also realize that if they are employing autistic individuals then that would be a perfect segue to attracting autistic customers.

I got so wound up and so incredibly anxious after dealing with all this in the morning that I have felt unwell the entire day. I tend to internalize my feelings.

Sometimes I think of our home, our planet as seen from space. It makes me realize how insignificant I truly am and helps puts things in to perspective.

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-Margaux

My favourite places to eat in Vancouver, BC!

This is kind of a bit of a milestone for me – I have written my first “list” article for a website that’s not my own! I really am a sucker for sweet treats and with the weather getting hotter and budgets getting tighter, it’s always good to look for the best value.

Check out my article here – Likes/Shares with all the social links on the left hand side give me a really good chance of making this go viral which would be immensely beneficial for  my chance at future content. I would LOVE to know what you think!

Article is here: https://www.society19.com/ca/amazing-food-places-in-vancouver-bc/

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To 2018 & beyond!

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I feel so incredibly lucky to have had the opportunity to have had 11 brands share their products with me to review.

I have always had lofty goals with having a platform to express myself and connect with likeminded individuals.

Things i’ve accomplished this year:

  • Focused on my blog
  • Ran two contests
  • Got a new job
  • Got a second cat

Things I plan to accomplish next year:

  • Gain press passes to events
  • Review films
  • Work with more brands/companies
  • Establish a media creation program for those who are differently abled
  • Network with those who can empower me and support my journey

I’m honestly so excited. I can’t wait to see what surprises are in store for me and for all of you. If you have any ideas or suggestions, i’m all ‘ears’, or shall I say ‘eyes’?

 

RETRAK Animalz Headphones Unboxing & Review!

 

Are you looking for super cute headphones that are soft, warm and really affordable?

Retrak makes incredibly affordable ones with a retractable cord and sound limiting technology. They are marketed towards kids, but if you have a small head like mine then you can easily rock these. There’s lots of different animals. No more BLASTING your eardrums with music that goes too loud. That will never happen with these.

Protecting young ears and creating a fun way to listen is what these are all about.

You can find more about them here:

What’s your favourite design?

Thank you Retrak for sending me these. All opinions are my own!

SOCKSMITH Socks Review!

OHHHHH BABY! Anyone who knows me, knows how much I LOVE NOVELTY FASHION with an intense passion. I was SO HAPPY when Socksmith returned my e-mail! I was not disappointed.

Socksmith is available at:

 

All opinions are my own.