More good things!

I have some exciting news to announce.

Not only was I a recipient of a BC Arts Council grant – which means I have the ability to create more awesome things, but my local MLA (Member of the legislative assembly) Rick Glumac spoke about me at the British Columbia Legislature in Victoria.

Here’s the video!

I am so grateful that my hard work was acknowledged and that he spoke up about the puzzle piece, awareness vs acceptance and used my correct pronouns.

I also wanted to announce that not only was I an independent consultant for York Universities Mental Health Literacy for Autism, but I am so pleased to show you that they chose to use my “Love Grows” image on the cover as you can see here.

If you like this design, I actually sell pins, patches and stickers with it in my etsy store!

I’ve also contributed to a few “Nothing with out us” segments on CBC’s “on the coast with Gloria Macarenko”, and i’m incredibly thankful that I have been given this opportunity.

I’ve been keeping myself as busy as possible and I will have many new items that i’ll be releasing soon and I even got my first dose of the covid-19 vaccine. I’ve been working on keeping myself hydrated and my mind in a more positive state. It’s a challenge though and I can’t wait until my family, friends and roommates are fully vaccinated.

I really can’t wait to share more good things with you.

Thank you so much for supporting me and reading.

My Enamel Pins

I am so proud to announce my newest pin design “Smiling Sun”, I can’t believe i’m up to five designs so far. This has always been a huge dream of mine and even though I haven’t sold a single sun pin yet, I feel like i’m trying to remain positive and set myself up for future successes.

I am hoping that, once Covid is a thing of a past (will that even happen?) that I will be able to participate in small festivals in Vancouver. I really think that these pins would be a huge hit.

There are many plans for the future, such as cute cat pins that I can create for charitable purposes. I have applied for some grants so fingers crossed I can get some more funding.

It also seems like the interest in my original art has completely dwindled and that the things that are selling well for me are my Neurodiversity Pride collection, my LGBTQ2+ collection, my Childfree enamel pins & my Autism identity enamel pins.

I try to remind myself that even though the interest in my merchandise and offerings has changed, that i’m still able to create whatever I want and bring more acceptance towards the Autistic community.

Here I am, wearing my Smiling Sun pin and I have themed my entire outfit based on the colours of the pins.

If you want to support me, please check out www.etsy.com/shop/retrophiliac and please share it with your friends. I thrive on word of mouth!

Aisle Period Underwear Review

As someone who identifies as non binary, getting my period is something that I don’t enjoy dealing with. I will admit that it’s MUCH better than the alternative (the alternative being pregnant, i’m openly childfree).

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Why I am not okay with the puzzle piece for Autism: A response & counterthought

I posted this video to my youtube channel. I try hard to create a corresponding post so that it makes it a bit more sharable and I can add a bit more context.

Youtube decided to recommend this video to me:

I took it upon myself to make a response:

I felt it was incredibly necessary for me to explain what exactly is wrong with the video and why it’s so hateful. I also wanted to represent some of my #ActuallyAutistic friends and activists who are on the other side of “the blue divide” and explain that yes, there are other symbols out there that do represent us much better than the puzzle piece. Although my reach on youtube may be smaller, my voice is still loud and valid.

I have also covered this topic before on a few more blog posts.

Life would be so much easier…

..If I didn’t wear my heart on my sleeve.

Photo by Rakicevic Nenad on Pexels.com

It’s so hard for me to read people, I know — i’ve written about this in the past, but it’s the truth.

I am vocal about being Autistic because my inability to connect with people is rooted in my neurodiversity. Now, i’m not saying it’s a bad thing (but it definitely can be).

I am still figuring out where my place is in the world and how I can integrate myself more seamlessly in to the environment around me and it’s not going well.

I don’t understand intent from others. I have been taken advantage of or put in situations that I believe will have a favourable outcome, but they don’t. It’s generally the other party who is interested and I go along with what is happening. I meet someone, spend time with them and then afterwards feel incredibly remorseful during my reflection of what just happened.

A lot of the time it can simply be the energy that I sense from others, i’ve been told before I am a “sensitive” and I don’t know the validity of that label, however what I do know is that I tend to repeat scenerios in my head. The more I seem to do this, the worse I feel. It’s the anxiety (once again) propelling me to a very dark place I didn’t want to go.

I have been getting back in to the dating pool and it has been incredibly draining for me. I don’t think i’m going to continue. I put my heart and soul in to everything I do and it tends to make me feel objectified. I am so eager to get to know people and learn their quirks, but I can’t say that it’s been easy trying to find people who understand me. They see me for one thing and that’s it. Also, identifying as non-binary puts a whole other wrench in to that situation because I am viewed as strictly female.

So, I deleted the dating apps and i’m done with that. I am not going to put myself through that hurt anymore. It’s time I focus on myself, my art, my writing, my advocacy work and OBVIOUSLY cats (because, hello, life is incomplete without them!)

Life always throws something my way, I feel like i’m always trying to decipher a code that I can’t crack.

Be kind; for I am fragile.

Anxiety, take the wheel.

Do I start this off with a content warning? Candid, mental health & anxiety sweat ahead.

With that out of the way, I want to talk about a few things that i’ve been thinking about lately. You know those perfect photos you see online? It’s all smoke and mirrors. All of it. I’m completely guilty of this. I am really struggling with my mental and physical health. I have been sleeping a lot, crying a lot and just overall not being terribly productive. I am basically a fleshy paperweight.

You see this here? This is what excruciating, emotional pain looks like. This is what a half hour of makeup application and meticulously placing my bobby pins in my hair looks like. I don’t even think I even am able to effectively fake a smile.

I know, i’ve gone around and around and around and posted about stuff like this (mental illness) before, but it’s such a large part of who I am and I wish it wasn’t.

Today tested me. It put everything I have been struggling with in to one hellish mess. Firstly, I had a big emotional meltdown yesterday — that started it all. Crying and saying a lot of things I didn’t mean to someone I care about are actions I severely regret. I have a hard time regulating my emotions. I’m not medicated–and the medication I tried did not work for me. (I had a very dismissive psychiatrist.) Our mental health system is very broken and I am having a hard time accessing suitable assistance.

Back to what happened today: I went to Superstore and tested my blood pressure at the “Wellness station” in the pharmacy. My reading was 149 / 100. Not good. Not good at all.

Photo by rawpixel.com on Pexels.com

We walked around a bunch because my health is not the greatest, so it was an attempt at physical activity. I was on board for this. I got a nice magenta top and then we walked over to H&M and I got a black tank top to wear under. This was an attempt at doing something nice for myself. We continued on and made a few more stops before we went in to Winners, which is owned by TJ Maxx — it’s essentially a Canadian version. I looked at some stuff. I went to go check out the Women’s clearance, and at this time I was feeling really concerned about my blood pressure reading. The thoughts were very persistent and added to the anxiety that is gnawing at my brain and tightening it’s grip on me. That induces sweat–the worst kind of sweat imaginable. I tried wedging my way in to the aisle where the clearance was and there was another customer looking at clothes. I tried to get by her and she kept looking at me. I couldn’t figure out why. Was I being rude? Was I bumping in to her and taking up too much room? What was going on? Well, I learned what it was quickly. Her eyes locked with mine, she gave me the filthiest, most disgusted look I have seen. My heart sank. She persisted to walk by me and wave her hand in the air, fanning it. I realized something: she was disgusted by the way I smelled.

I didn’t even realize it. No matter how much deodorant or anti-perspirant I put on, I still could not cover up my extreme anxiety. I was so embarrassed. Everything I wanted to see in the store, she happened to end up in that department. When I went to check out with the two items I picked up — a rust coloured top and some Schmidt’s Charcoal + Magnesium Deodorant (yes, I picked it up after this happened), GUESS WHO WAS IN FRONT OF ME IN THE LINE? Oh my god. I almost had a panic attack. On the one hand, I already felt like trash but then apparently I smelled like it too? Awful. I couldn’t even look her in the eye. I tried to maintain my distance but lines make it so that there’s a person in front of you and a person behind you. If it wasn’t for the purchases I wanted to make, I would have left right away and went back to being a hermit.

I still feel ashamed and disgusted. I obviously learned a valuable lesson today and I realize that I have to really put more effort in to the way I present myself and carry some kind of spray or something with me, even if i’m irritated by artificial smells, just to maintain some level of decency and consideration for those around me. The last thing I want is to be looked down upon by people I don’t even know because the emotional pain that it brings me just adds to the depressed and anxious feelings I already have.

Oh, and on top of that, I spent nearly 5 hours at the Emergency room in regards to my blood pressure, I had various tests done and will be following up with an outpatient clinic. I want answers or at least medication to help get it more regulated.

I definitely want today to be over.

Seeking Member Submissions

for the Made By Autistics Community! I am starting a website and may buy a domain name soon (if I can afford it!). I would love to feature more people.

https://madebyautistics.wordpress.com/members/

Join us on Facebook. The community page will have more information on how to submit.

What Happens When Autism Speaks Appoints A New Ambassador

Before any opportunity is offered to me, I always do my research. I search up the positives and negatives so I can make an informed decision. That seems to be common sense; at least that’s what I thought.

Occasionally, i’ll do a twitter search for “Autism Speaks” to see what kind of propaganda is being perpetuated. I’ll usually see parents, this running app (CharityMiles) that donates to them and merchandise with puzzle pieces for sale.

Yesterday was a bit different. The last big rift between the Autistic community and an outspoken supporter of Autism Speaks would be the whole Niantic deal. The Makers of POKEMON GO decided it would be excellent publicity to partner with the Autism Speaks Run and have their own family fun booth. They were met with outrage and rightfully so. Pokemon Go gave some individuals a reason to get outside and engage. I wasn’t one of those people, but there were other reasons given that made it seem like the Autistic community embraced it–that is, until, they made an incredibly rash decision without any research.

So, back to yesterday, I noticed there was a gamer by the name of Ash or Clash With Ash (CWA) who was incredibly excited to share the news of his ambassadorship with Autism Speaks. His video was complete with puzzle pieces in the background. What a lovely touch.

He’s even gone so far as to raise money for AUTISM SPEAKS, already.

We, the Actually Autistic community have been on it. We’ve let him know that this isn’t helping us – that it’s actually hurting us. Ash’s followers are commending him and don’t seem to be questioning him. I’m assuming they believed he did his due diligence and researched Autism Speaks before he went full out and posted all his puzzle-piece laden propaganda for them to eat up and praise him for. He’s been incredibly quick to thank his supporters and put us in the backseat. Part of me believes he thought this would be good publicity and paint him as some kind of saint because his late Brother was Autistic. Here’s the initial tweet that started this all.

If you take the time to scroll through his twitter, you’ll see the calm before the storm. I took it upon myself to let his followers know that his actions are the opposite of commendable-by informing them that Autism Speaks is not a good organization. I don’t recall any of them responding to me.

I’m not sure how this benefits him. Perhaps it gives him a greater sense of purpose and believes that because he has a platform and an audience, that he could bring some kind of awareness to a cause he says is so important to him. We don’t need that. We can advocate for ourselves without hiding behind the guise of a hate group. There’s also better organizations to donate money to, like ASAN.

If you wish to add your opinion and let him know that we don’t need him to speak on our behalf, his social media platforms are:

If you want to learn why Autism Speaks is so terrible, here’s a great list: A Roundup of Posts Against Autism Speaks

Radio Interview & Update

Here’s the radio interview. A special thanks to Brianne for not only recording, but uploading it on youtube. 

I have also updated my ABOUT section so you’ll be able to see the links for all my press!

Laurie Guerra has stepped down.

Here is the official statement issued by AutismBC

NO one is taking accountability for Laurie Guerra’s actions.

Read below as I dissect each paragraph and give my own personal opinion on what has been said.

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