Life would be so much easier…

..If I didn’t wear my heart on my sleeve.

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It’s so hard for me to read people, I know — i’ve written about this in the past, but it’s the truth.

I am vocal about being Autistic because my inability to connect with people is rooted in my neurodiversity. Now, i’m not saying it’s a bad thing (but it definitely can be).

I am still figuring out where my place is in the world and how I can integrate myself more seamlessly in to the environment around me and it’s not going well.

I don’t understand intent from others. I have been taken advantage of or put in situations that I believe will have a favourable outcome, but they don’t. It’s generally the other party who is interested and I go along with what is happening. I meet someone, spend time with them and then afterwards feel incredibly remorseful during my reflection of what just happened.

A lot of the time it can simply be the energy that I sense from others, i’ve been told before I am a “sensitive” and I don’t know the validity of that label, however what I do know is that I tend to repeat scenerios in my head. The more I seem to do this, the worse I feel. It’s the anxiety (once again) propelling me to a very dark place I didn’t want to go.

I have been getting back in to the dating pool and it has been incredibly draining for me. I don’t think i’m going to continue. I put my heart and soul in to everything I do and it tends to make me feel objectified. I am so eager to get to know people and learn their quirks, but I can’t say that it’s been easy trying to find people who understand me. They see me for one thing and that’s it. Also, identifying as non-binary puts a whole other wrench in to that situation because I am viewed as strictly female.

So, I deleted the dating apps and i’m done with that. I am not going to put myself through that hurt anymore. It’s time I focus on myself, my art, my writing, my advocacy work and OBVIOUSLY cats (because, hello, life is incomplete without them!)

Life always throws something my way, I feel like i’m always trying to decipher a code that I can’t crack.

Be kind; for I am fragile.

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Anxiety, take the wheel.

Do I start this off with a content warning? Candid, mental health & anxiety sweat ahead.

With that out of the way, I want to talk about a few things that i’ve been thinking about lately. You know those perfect photos you see online? It’s all smoke and mirrors. All of it. I’m completely guilty of this. I am really struggling with my mental and physical health. I have been sleeping a lot, crying a lot and just overall not being terribly productive. I am basically a fleshy paperweight.

You see this here? This is what excruciating, emotional pain looks like. This is what a half hour of makeup application and meticulously placing my bobby pins in my hair looks like. I don’t even think I even am able to effectively fake a smile.

I know, i’ve gone around and around and around and posted about stuff like this (mental illness) before, but it’s such a large part of who I am and I wish it wasn’t.

Today tested me. It put everything I have been struggling with in to one hellish mess. Firstly, I had a big emotional meltdown yesterday — that started it all. Crying and saying a lot of things I didn’t mean to someone I care about are actions I severely regret. I have a hard time regulating my emotions. I’m not medicated–and the medication I tried did not work for me. (I had a very dismissive psychiatrist.) Our mental health system is very broken and I am having a hard time accessing suitable assistance.

Back to what happened today: I went to Superstore and tested my blood pressure at the “Wellness station” in the pharmacy. My reading was 149 / 100. Not good. Not good at all.

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We walked around a bunch because my health is not the greatest, so it was an attempt at physical activity. I was on board for this. I got a nice magenta top and then we walked over to H&M and I got a black tank top to wear under. This was an attempt at doing something nice for myself. We continued on and made a few more stops before we went in to Winners, which is owned by TJ Maxx — it’s essentially a Canadian version. I looked at some stuff. I went to go check out the Women’s clearance, and at this time I was feeling really concerned about my blood pressure reading. The thoughts were very persistent and added to the anxiety that is gnawing at my brain and tightening it’s grip on me. That induces sweat–the worst kind of sweat imaginable. I tried wedging my way in to the aisle where the clearance was and there was another customer looking at clothes. I tried to get by her and she kept looking at me. I couldn’t figure out why. Was I being rude? Was I bumping in to her and taking up too much room? What was going on? Well, I learned what it was quickly. Her eyes locked with mine, she gave me the filthiest, most disgusted look I have seen. My heart sank. She persisted to walk by me and wave her hand in the air, fanning it. I realized something: she was disgusted by the way I smelled.

I didn’t even realize it. No matter how much deodorant or anti-perspirant I put on, I still could not cover up my extreme anxiety. I was so embarrassed. Everything I wanted to see in the store, she happened to end up in that department. When I went to check out with the two items I picked up — a rust coloured top and some Schmidt’s Charcoal + Magnesium Deodorant (yes, I picked it up after this happened), GUESS WHO WAS IN FRONT OF ME IN THE LINE? Oh my god. I almost had a panic attack. On the one hand, I already felt like trash but then apparently I smelled like it too? Awful. I couldn’t even look her in the eye. I tried to maintain my distance but lines make it so that there’s a person in front of you and a person behind you. If it wasn’t for the purchases I wanted to make, I would have left right away and went back to being a hermit.

I still feel ashamed and disgusted. I obviously learned a valuable lesson today and I realize that I have to really put more effort in to the way I present myself and carry some kind of spray or something with me, even if i’m irritated by artificial smells, just to maintain some level of decency and consideration for those around me. The last thing I want is to be looked down upon by people I don’t even know because the emotional pain that it brings me just adds to the depressed and anxious feelings I already have.

Oh, and on top of that, I spent nearly 5 hours at the Emergency room in regards to my blood pressure, I had various tests done and will be following up with an outpatient clinic. I want answers or at least medication to help get it more regulated.

I definitely want today to be over.

Seeking Member Submissions

for the Made By Autistics Community! I am starting a website and may buy a domain name soon (if I can afford it!). I would love to feature more people.

https://madebyautistics.wordpress.com/members/

Join us on Facebook. The community page will have more information on how to submit.

What Happens When Autism Speaks Appoints A New Ambassador

Before any opportunity is offered to me, I always do my research. I search up the positives and negatives so I can make an informed decision. That seems to be common sense; at least that’s what I thought.

Occasionally, i’ll do a twitter search for “Autism Speaks” to see what kind of propaganda is being perpetuated. I’ll usually see parents, this running app (CharityMiles) that donates to them and merchandise with puzzle pieces for sale.

Yesterday was a bit different. The last big rift between the Autistic community and an outspoken supporter of Autism Speaks would be the whole Niantic deal. The Makers of POKEMON GO decided it would be excellent publicity to partner with the Autism Speaks Run and have their own family fun booth. They were met with outrage and rightfully so. Pokemon Go gave some individuals a reason to get outside and engage. I wasn’t one of those people, but there were other reasons given that made it seem like the Autistic community embraced it–that is, until, they made an incredibly rash decision without any research.

So, back to yesterday, I noticed there was a gamer by the name of Ash or Clash With Ash (CWA) who was incredibly excited to share the news of his ambassadorship with Autism Speaks. His video was complete with puzzle pieces in the background. What a lovely touch.

He’s even gone so far as to raise money for AUTISM SPEAKS, already.

We, the Actually Autistic community have been on it. We’ve let him know that this isn’t helping us – that it’s actually hurting us. Ash’s followers are commending him and don’t seem to be questioning him. I’m assuming they believed he did his due diligence and researched Autism Speaks before he went full out and posted all his puzzle-piece laden propaganda for them to eat up and praise him for. He’s been incredibly quick to thank his supporters and put us in the backseat. Part of me believes he thought this would be good publicity and paint him as some kind of saint because his late Brother was Autistic. Here’s the initial tweet that started this all.

If you take the time to scroll through his twitter, you’ll see the calm before the storm. I took it upon myself to let his followers know that his actions are the opposite of commendable-by informing them that Autism Speaks is not a good organization. I don’t recall any of them responding to me.

I’m not sure how this benefits him. Perhaps it gives him a greater sense of purpose and believes that because he has a platform and an audience, that he could bring some kind of awareness to a cause he says is so important to him. We don’t need that. We can advocate for ourselves without hiding behind the guise of a hate group. There’s also better organizations to donate money to, like ASAN.

If you wish to add your opinion and let him know that we don’t need him to speak on our behalf, his social media platforms are:

If you want to learn why Autism Speaks is so terrible, here’s a great list: A Roundup of Posts Against Autism Speaks

Radio Interview & Update

Here’s the radio interview. A special thanks to Brianne for not only recording, but uploading it on youtube. 

I have also updated my ABOUT section so you’ll be able to see the links for all my press!

Laurie Guerra has stepped down.

Here is the official statement issued by AutismBC

NO one is taking accountability for Laurie Guerra’s actions.

Read below as I dissect each paragraph and give my own personal opinion on what has been said.

Continue reading

Passing Judgment

Throughout my life, people have passed judgment on me based on the way I look, act or quite frankly who I am.

I think the way I present myself has a lot to do with my sensory sensitivities. For instance: I don’t “dress my age” and I prefer wearing comfortable clothing such as shirts that are a men’s size small, jeans, and slip on shoes. I rarely wear makeup and I usually just brush my hair and head out the door. It’s already so mentally trying to go out in to the world that the energy I would use to make myself presentable gets used up so fast. By that time, i’m already beyond drained and I start feeling physically ill.

 

Sometimes I dress very casually and sometimes I look fancy.


My intellectual capacity is clearly questioned because some people, whether it’s conscious or not, believe that the way someone looks has to do with the way they think.

I was treated very poorly at a restaurant and I can’t say for certain that it had anything to do with the way I looked, but I wouldn’t be surprised. It seemed like I was stereotyped as dumb and trashy because of my use of coupons and was spoken down to – which i’m still feeling anxious and upset about.

The English idiom “don’t judge a book by its cover” is a metaphorical phrase which means “you shouldn’t prejudge the worth or value of something by its outward appearance alone”. For example “That man may look very small and insignificant, but don’t judge a book by its cover – he’s a very powerful man in his circle”. —Wikipedia

We all deserve a little kindness and compassion, no matter what we look like.

sunset hands love woman

Photo by Stokpic on Pexels.com

 

Links of interest:

 

For Us Without Us

Brand New Video!

I’m Childfree.

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When I was younger, other kids would play with dolls. I didn’t care for them. I had no instinct to play with toys that were reminiscent of future motherhood. I preferred hot wheels, crazy bones, reading books and once in a while I pulled the heads off my sisters Barbie dolls. When I got older, Pokemon was all the rage and you’d often find me on my lime green game boy colour. The motherly instinct never arrived and I was completely fine by that.


I was with my family at an outdoor square yesterday and as everyone was conversing, there was this lady with her crying infant. The screams tore through me like the feeling of walking on shards of glass. It was immensely painful to listen to. I couldn’t take the shrill, repetitive noises. I felt just as though I was going to get the worst migraine ever. I started feeling anxious, panicked and ready to leave. At this point, I wished I had a pair of some really good sound cancelling headphones or a pair of earplugs that filter all the sound out. My sensitivity to loud noises was being tested and I was feeling very frantic. I just wanted it to stop, so badly.

hands black and white fingers palm

Photo by Josie Stephens on Pexels.com

I have never seen myself as a Mother. Hell, I don’t even consider myself very feminine.

Having a child and having those responsibilities is something that shouldn’t be taken lightly. There’s a lot of financial resources needed and a lot of time, effort and stress – none of which I even would remotely ever want to take on. I am happy being an Aunt to two wonderful kids.

I also absolutely love, love, love my rescue cats. They fill any kind of need I may have to be nurturing, without making me compromise who I am. I love their pink jellybean toes, cute noses and small tiger-like qualities. They are my little house lions.

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It’s not like I don’t support other people’s children. (Doesn’t even matter if I want to or not) It’s mandatory as it is included in taxes which are then given back in the forms of tax rebates if you have children.  There are also a lot of politicians touting free childcare as part of their campaign promises to lure voters.

girl crying on woman s lap

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This will NEVER be me – and I am beyond pleased to say it.


For more reading on this subject, please check out:

Meowbox Unboxing // Art Pictures!

Figured i’d put these together in one post!

Thank you MEOWBOX, you made Buddy & Ruby so happy.

 

 

Here’s some of my art, each and every piece is up for sale so feel free to contact me if you’re interested: