Not only was I a recipient of a BC Arts Council grant – which means I have the ability to create more awesome things, but my local MLA (Member of the legislative assembly) Rick Glumac spoke about me at the British Columbia Legislature in Victoria.
I am so grateful that my hard work was acknowledged and that he spoke up about the puzzle piece, awareness vs acceptance and used my correct pronouns.
I’ve also contributed to a few “Nothing with out us” segments on CBC’s “on the coast with Gloria Macarenko”, and i’m incredibly thankful that I have been given this opportunity.
I’ve been keeping myself as busy as possible and I will have many new items that i’ll be releasing soon and I even got my first dose of the covid-19 vaccine. I’ve been working on keeping myself hydrated and my mind in a more positive state. It’s a challenge though and I can’t wait until my family, friends and roommates are fully vaccinated.
I really can’t wait to share more good things with you.
I had reached out to Mortgage Tree in the past to provide them with feedback about how terrible their campaign was.
I’ve already written extensively and provided a free guide for businesses to understand how to navigate these treatorous waters, but they actively choose not to listen.
I created a video and a long blog post about all the things that happened.
They made a plethora of excuses and essentially negated my voice and all the feedback that I had for them. Seems like they’ve continued on this campaign and also have continued to hire a NON-AUTISTIC artist (from what it seems) to create a colouring book page for them.
I felt like my contributions were worthwhile and at this point I feel like the stress and fighting is far outweighing the benefits and my mental health is suffering. I am at a low point.
If the goal is to help folks, we should be understanding that the worst thing to do is penalize people.
I’m unsure what happened to the ideals of kindness, speaking to people with respect and understanding. It seems like this has all fallen by the wayside. Instead, there’s folks out there with sheer anger and frustration, taking it out on everyone for the world to see.
It’s sad to know that we’ve come to a place where instead of activism, advocacy and helping people, we’ve been reduced to videos where folks are naming names and creating a cult or pact mentality against folks in our community.
Is re-victimizing and triggering folks helping anyone? If we are to be helpful, why is calling out people in videos acceptable, acknowledged and praised? This should never be the baseline.
The focus has been taken away from information, knowledge and advice and has turned in to dictatorship with numerous folks joining in on the bullying, further strengthening the ability to dog pile and driving them to their lowest point – driving them to contemplate suicide.
The sad thing is, it’s going to happen. Someone is going to end up harming themselves. I know that I was made to feel like an absolute piece of human filth. I felt like crying. I was triggered, I was brought to panic. I also was made to be unable to seek emotional help that I was in dire need of.
I’m not trying to argue. But at what point do I have to say “enough is enough”?
Well i’ll tell you:
When the emotional toll becomes too much to bare and helping people is overshadowed.
We shouldn’t be bullying folks out of activism and advocacy. If our goal is to help people, why are so many folks being driven to mental breakdowns? Because the opportunity to listen has turned in to the opportunity to dictate.
I’m not putting myself through this. I’m beyond sad. I’m not trying to argue, i’m not trying to fight, i’m not trying to start a war. But this is eating away at me and the moment i’m told to stay silent becomes the moment I have to speak.
I am unapologetic about this. I’m very open about it and I do get harassed often on dating sites & apps by men who don’t read my profile about it. So, I wanted to create an enamel pin that would be an excellent accessory to lapels, backpacks and much more. This was not a product that I was able to purchase from someone else, so I took it amongst myself to create. So far, i’ve sold 18 since launching them just a few days ago.
If you stumbled upon my page from Autism Candles, please note:
I do NOT endorse Nathan. I have asked him MULTIPLE TIMES to remove my content from his blog and he has refused and has chosen to gaslight me. He is featured in an Autism Speaks employment toolkit and it is in my best interest to not be associated by someone who has associations with AS and chooses to use the colour blue. I do have screenshots of our conversations but I am not going to be posting them. I just felt that I needed to disclose this.
Sadly, due to his combative nature and inability to respect my wishes to remove my content, I have removed the reblog feature for my posts.
If he is posting your content, perhaps you can try to ask him to remove it – but chances are you’ll be met with an argument versus a kind response agreeing to take it down. I really thought he’d be a little kinder about it, but he hasn’t been. I’ve already tweeted to him in the past and we had a pretty heated argument that he seemed to have forgotten about.
I have wanted to write about this for a while but I have been putting it off.
I wanted to address the issue with “Autism Moms” or “Autism Parents” and the exploitative tactics that sellers of Puzzle piece merchandise utilize to gain sales.
I reached out to a parent run company on etsy that was selling a sparkly puzzle piece enamel pin in honour of their Autistic child. I tried to educate them and tell them that it is a symbol of hate and eugenics, and instead they felt threatened by me and told me if I continued to contact them, that they’d report me to etsy.
There’s over 6,000 listings for the search query of “Puzzle piece Autism”. These are sellers who are EXPLOTING THE IGNORANCE OF FOLKS WHO DO NOT KNOW IT’S A HATE SYMBOL. Chances are, the people selling these items are profiting off this. They probably know how harmful this symbol is and yet they continue to perpetuate it because it’s PROFITABLE.
I’m unsure of how many folks don’t see the problem here. Profiting off these symbols and selling them to unsuspecting individuals is wrong and again, incredibly exploitative.
I’m in a facebook group and a mother had asked about her “Autism Mama” bracelet which was adorned with puzzle pieces, and she was quickly – and swiftly educated.
I ended up having an “Autism Mom” slide in to my private messages and DEMANDING I educate her on the subject. There was more than enough information in the initial thread. She weaponized an Art of Autism article against me about someone who was pro-puzzle piece (but denounced her support in the beginning of the article). I had asked The Art of Autism to amend this article to include pertinent articles and was met with an uncomfortable misunderstanding. At this point, I will no longer associate myself with The Art of Autism.
A note: If you’re a PARENT of an AUTISTIC CHILD, Do -NOT- co opt their diagnosis as your identity. This is NOT your identity. Don’t talk over Autistic adults. Listen instead. Remember: Your child is going to be an ADULT SOMEDAY. Wouldn’t; you want them to be able to help others and feel empowered?
Also: don’t expect Autistic adults to be a certain way or to provide endless advice. We don’t owe anyone (especially parents) anything.
If you need more information about this, please visit:
I seem to utilize my blog at times where I feel really emotional, or post meltdown. Sometimes I feel calm and serene while updating but most of the time I am dealing with inner turmoil.
Periodically throughout the years, someone who made negative comments about my mother and essentially ghosted me over a decade ago, has constantly reached out to my family members to engage in friendly banter — all while choosing to ignore me with every attempt to find out what I did wrong, apologize and clear the air. This person would press ‘block’ nearly immediately.
I wasn’t trying to recreate a friendship we just had (which is what they thought I was trying to do), I was merely trying to reduce or eliminate the negative feelings they had towards me.
I thought this was the right thing to do.
Seeing the comment they made yesterday (on my family members post) was no different. I sent an apology, said their kindness ‘didn’t go unnoticed’ and attempted to reach out. I had done this periodically throughout the years in the hopes that they would grow as a person, forgive and ‘be okay’ with who I am as a person. I’m not sure why I would be lead to believe any differently when the example of their behaviour that I was presented with was kind, conversational and engaging.
Well, I was wrong. I was very wrong. Once again, I misread the social cues. I reached out and got blocked.
I went to my other (art) account and then asked them to “please do not interact with my family anymore.” I had told my family member how this person had been treating me throughout the years (with visual proof, this time) in the hopes that they would stand by me, support me and no longer associate with someone who had been treating me so disrespectfully.
The response I got was probably one of the cruelest, most judgemental messages I have ever received in my life. There were comments about me being negative, toxic, throwing a temper tantrum, how this person is in their 30’s now and they’ve grown and that’s due in part to the fact that I am no longer in their life, that my attempts to reach out (and in my words, reconcile) were harassment. This was two exceptionally long messages. I then explained that my family member had read the words they told me, and finally they told me to ‘go F myself’ and that I was ‘toxic AF’. This person also chose to misgender me. If they would have taken the time to even learn about my Autism diagnosis, they would have seen how these comments were rooted in ablism. I did not have my diagnosis until 5 years ago. I didn’t even self diagnose at the time we were friends.
Now, let’s not forget that people change a whole lot in 12-14 years. I certainly am not the same person I was in my late teens/early twenties. My main focus is doing what I can for the Autistic community and supporting cat welfare organizations when I am able to. My mindset is “What can I do for others?” —especially in times of distress.
The part that hurt the most is that this lead to a huge argument with my family member who was incredibly defensive and refused to cut this person out. Fortunately, this former friend of mine blocked my family — but in the end, it wasn’t really about the former friend. It was about remaining loyal to family. It was about being supportive of your family member when someone else has chosen to spew words that don’t; harbour any truth; words that were made to hurt.
I cried a significant amount last night. I had a meltdown. I felt like I couldn’t see, like I couldn’t breathe. None of the words I was saying (and the way I was explaining the situation) seemed to have resonated with those around me. I felt wholly exasperated.
I was essentially crying out for much needed emotional support and I was not getting it from those around me. I was not getting the “I care about you. This person treated you poorly. I love you, I have your back. I wouldn’t ever associate with someone who treats you like this. This is showing who they are as a person and it’s not reflective of who you are.” None of that. I got this kind of support from my friends, albeit – online. That doesn’t negate how thankful and gracious I was to each person who was willing to listen.
The moral of the story is: remain loyal to your friends and family. Stand up for them. Don’t allow them to be bullied by others. Don’t sit idly by and be complacent. Not involving yourself is essentially saying “hey, this behaviour is okay.” it’s not saying “i don’t want to be involved in drama.”
Engaging in friendly banter with someone who bullies your relative is a way to continue to re victimize and trigger them — yes, it is even worse if they are Neurodiverse. We need more allies. We need less people to be complacent with ableist behaviour and more people to stand up and say “this isn’t okay how you are treating them (my family). I don’t feel comfortable engaging with you unless you make amends and express kindness towards them.” either that, or swiftly blocking them without allowing pride to get in the way.
I posted this video to my youtube channel. I try hard to create a corresponding post so that it makes it a bit more sharable and I can add a bit more context.
Youtube decided to recommend this video to me:
I took it upon myself to make a response:
I felt it was incredibly necessary for me to explain what exactly is wrong with the video and why it’s so hateful. I also wanted to represent some of my #ActuallyAutistic friends and activists who are on the other side of “the blue divide” and explain that yes, there are other symbols out there that do represent us much better than the puzzle piece. Although my reach on youtube may be smaller, my voice is still loud and valid.
These are MY PERSONAL VIEWS. These belong to me. Other Autistic folks may agree and some may disagree.
I wanted to talk about something that’s been really unnerving lately which is: Non Autistic Parents of Autistic Children sharing imagery and inspiration porn that is very harmful.
As an Autistic person myself, I feel as though attempting to bridge the gap with Autistic parents is a very important stepping stone to creating unity and setting their Autistic child up for success in the future. Assisting them with the tools needed to make sure that hateful imagery, improper terminology and ableism is eliminated. However, when Parents of Autistic children and their friends chime in and belittle, berate and negate the work of an Autistic person, this is moving backwards.
A few days ago I saw this image come up on my facebook feed. I was dumbstruck.
It got widely shared by this father who I believed I was friends with and he tagged his wife and said his child would love it. I pointed out 2 very prevalent things that are troublesome:
Autism, or being Autistic IS a disability however–there’s nothing wrong with that.
I even linked an article and mentioned how I create content on the subject. Two friends of this father chimed in and essentially told me that just because I create content and cite sources, doesn’t mean that it’s true and that I should allow this father to be happy. I explained how I want their child to be set up for success in the future and that I am only trying to be an ally. I wanted to provide information as to how these things were harmful and that speaking over an Autistic person when they are trying to HELP truly doesn’t help anyone at all. I also mentioned that, at it’s core, it is incredibly ableist and problematic.
No one defended me. None of my Autistic friends were able to even come and assist. Although the facebook post was public, the comments were not open to everyone. Eventually I gave up and I deleted this father from my friends list. He had ample opportunities to take this as a learning opportunity and chose not to. He also did not hold me in any kind of regard because if he did, he would not have allowed me to get attacked the way I did. I can only hope that his child gets the kind of support that he needs because if how I was treated was any kind of indication, I have a reason to be worried.
If you are a parent of an Autistic child and you are looking for help, here’s what I can suggest:
Do not take content creator Daniel Jones of The Aspie World as fact. He creates sensationalized content that is, at the source, his income. He very rarely (if ever) cites sources for the material he creates and is not an ally to the rest of the Autistic community. I have even been sworn at by his content manager before and I have created 2 react videos. Please DO NOT utilize his advice to assist your child.
Reach out to Autistic adults – the ones that have your child’s best interest at heart. We can be the best resources available as we have lived this. Also, I do not create content for money. I do this from my heart because this truly gives me purpose in my life.
Do not negate Autistic voices. Allow yourself the opportunity to learn from us. We are the best allies for your children and, for the most part, we want to impart our wisdom and create change. If anything, we want to help. Obviously i’m not speaking for everyone.
I hope this shed a little bit of insight on some of the struggles we face on a daily basis. It’s truly not easy but by listening to Autistic people and truly taking in the things we say is a great step to unity, change and acceptance for all.