Autism $peaks Walk 2018.

This is a FUNNY (not) story. My Mother was doing some banking recently and overheard a Woman talking about an Autism walk coming up. My Mom asked if it was Autism Speaks and the woman didn’t know. Apparently it WAS autism speaks.

I took it upon myself to contact some notable sponsors who are ALL listed on their website.

This is the message I sent:

Hello Autism Speaks Canada Donor,

My name is Margaux Wosk and I am an outspoken advocate for Autistic individuals like myself. I wanted to take the time to tell you a little bit about the negative impact you are having on our community.

Autism Speaks is highly disliked and rather frowned upon by the #actuallyautistic community. We use the hashtag #boycottautismspeaks.

Autism Speaks wants to find a cure for us, they believe we should cease to exist and with their genetic testing and “research” –well, it’s all in the hopes that we should vanish off the planet. Eugenics, plain as day.

Only a very small fraction of the funds they raise goes to help autistic individuals, i believe 5 percent. The majority of it goes to research. We do not need a cure, we do not need awareness. We need acceptance and inclusion. Those are the most important things for us. Clearly, I would know since I believe individuals like us deserve respect.

We do not want a cure; we do not support ABA.

If you’re interested in better places to donate your funds, please consider the autistic self advocacy network or even our local Autistic Meetup Group. They are always in need of help.

To learn more about me, please check out http://www.navigatingjourney.com

I was recently featured in Black Press Medias’ online and press publications in regards to my art and advocacy and I spoke out against autism speaks. https://www.langleytimes.com/community/cloverdale-artist-finds-activism-for-autism-through-painting/

I would hope you would take this chance to respond to me and reconsider your support and financial contributions to autism speaks in the future.

Here’s a response I received from the top donor, milau who works for the Royal Bank of Canada:

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I do not know how you got my email but please do not email me.

Hm, I wonder how I did that.

 

 

Invalidated by a neurotypical person, silenced and falsely accused of spreading misinformation… This is terrible and these are the people that are raising money for us to fail to exist. I’m not surprised by the fact I was just spoken down to and told to not email this person. Awful.

Silenced again, this time by a local childcare provider:

 

 

Silenced ONCE AGAIN by a donor:

ASsilence

if they don’t want their names public then maybe they should consider that their names are publicly posted on the autism speaks website?

 

OUR VOICES SHOULD MATTER.

Please signal boost this if you can.

Autism Speaks is focused on “autism research and awareness.”

We need acceptance, not awareness.

 

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Years may go on…

..but words still hurt and the pain lingers.

closeup photography of loser scrabble letter

Photo by Shamia Casiano on Pexels.com

I believe in the power of words. Whether it’s for good or bad, words linger. The power you can have over someone else’s emotions and personal strength is more impactful then you probably realize. That being said, tomorrow is my birthday and today I feel a bit crestfallen.

15 years, 20 years or 25 years, does the timeline really matter if you still feel the same way that you did when that person said or did that hurtful thing to you? Does time invalidate the pain or the ability to make things right with someone who you may have said incredibly distressing things to? No. Never.

You have time to make things right; time to heal those who you have wounded.

I feel like a fool sometimes for reaching out to those people and try to give them a chance to make amends, clear the air and have a positive interaction with me — but some of those people would rather make it seem like I am the one at fault; like I deserved it.

Reliving these terrible instances is a horrible way to live. Oh, and not only live, but sleep, dream or even have nightmares about it. Why are some worthy of respect from these individuals, even friends of mine, and yet I’m not? I don’t know if it’s because I’m wired differently, because I’m neurodiverse or because my skin isn’t as thick as it could be. I wear my heart on my sleeve. I spent so many years crying and being ‘beat up’ emotionally by those around me, including a family member who should have set a good example. The term “emotional punching bag” comes to mind.

DoodleBeth illustrates it perfectly. It was truly kismet to see this images yesterday.

If someone gives you the chance to make things right, please don’t insinuate that the victim is the one to blame when given the chance to make things right:

“I am sorry you harboured this feeling for so long. i’m not sure if I can give you the response that you wanted – but I do hope you can mend that hole.”

 

In conclusion:

Please make amends with those you may have hurt.
Your words are more powerful than you realize.
Be kind.

Autism Speaks…..

…But apparently, they do not listen!

If you haven’t seen this, you should:

This whole thing is laughable at best.

I was interviewed by a local, community newspaper under the umbrella of black press media. The reporter was incredibly interested in my art, autism and my story.

I specifically told her about my disapproval of Autism Speaks and how their aim is to eradicate autistic individuals like myself. I told her how important this detail was in regards to my own journey.

Every so often, I find myself looking up the title of the article to see where it’s been posted.

To my surprise, a disgustingly sick feeling came over me, It has been posted on the Autism Speaks facebook page for all to see.

The VERY article that had this statement in it:

The goal, Wosk explained, is to help people become more educated about autism — that’s why she spends much of her online time being an activist for autistic people and protesting against organizations like Autism Speaks, which Wosk said spend more time looking to eliminate autism rather than support autistic people.

It had been up for 2 hours with over 40 likes and 2 shares.

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I don’t think any of those Autism Speaks supporters (or even Autism Speaks themselves) even bothered to read my article, because if they did, they wouldn’t have posted anything with an unfavorable mention.

This begs the even larger question of the importance of autistic opinions. I believe that when it all comes down to it, it’s that money rules and we don’t matter.

This was certainly not my first online encounter with this greedy “charity”. Nope. Autism Speaks Canada actually e-mailed me once trying to tell me all the things they do. TELLING me is important to note because they failed to read or even address anything I had said.

 

In conclusion:

Autism Speaks wants to replace and eliminate us. Our voices are not worthy or important to them.

I’m just going to leave this here.

Featured in The Peace Arch News & Cloverdale Reporter!

Read the article here https://www.peacearchnews.com/community/cloverdale-artist-finds-activism-for-autism-through-painting/

#MyAutism

#MyAutism.jpg

There’s a lot of Anti-Vaxxers & people who believe that autism should be eradicated.

Because of a joint effort from all the #actuallyautistic allies, lead in part by International Badass Activists @badassactivist We were able to successfully take over the #endautismnow hashtag that is promoting a book called “how to end the autism epidemic” by JB Handley & promoted ignorantly by Jenny McCarthy, they’ve come up with a new hashtag, #MyAutism.

Now, I believe this gives me a chance to talk about my autism and who I am as an individual, instead of seeing a ridiculous amount of nonsense. I hope more of us take this opportunity to show the world we belong here and we do not need to be wiped off the planet.

#EndAutismNow? More like #LoveAutismNow

Today, I stumbled upon a video shared by Eve of International Badass Activists. It was Jenny McCarthy promoting a hateful book and spreading the idea of #endautismnow on September 20th, the release of the book.

Transcript of her video:
“Hey Guys, Jenny McCarthy here. I’m back! With my 2nd call to action.

1st off, thanks you so much for coming in droves to support my 1st call to action: Which was to pre buy jb handleys book, how to end the autism epidemic.

The power we have when we all come together with common goals is immeasurable! And what better common goals than to bring us together then the health, the safety, the love of our kids AND wanting to prevent this from happening to future families.

The more time passes the more difficult it is for us to tell our stories and it’s only going to become more difficult.
SO WE MUST ACT NOW, which leads to our next mission, SEPTEMBER 20TH IS THE date of the book release and we want to see hundreds of you at bookstores across the country, where we will facebook live holding up copies of this book

The book that will reveal the truth behind the autism epidemic and most importantly, help end the autism epidemic.

Now this is how we can make it happen:
There’s a page I called, that it started, hashtag ENDAUTISMNOW
This will be an ambassador sign up page and what i need from ambassadors will be to represent your city and bookstore along with creating a facebook page so people in your city know where to go and once you’re accepted in the group, i will be filling you in with more details, now the goal again is to reach out to as many people as possible in your area to pre-buy the book, “how to end the autism epidemic” and then gather as many people as possible to that bookstore on september 20th and we will all facebook live from hundreds of stores across the country. They might have silenced many of our kids, but they ain’t gonna silence us. The groundbreaking information in jb handleys book could lead to the end of the autism epidemic. But that’s only the first step! It’s up to us, we’ve got to come together, unite and make some noise! Kim Kardashians’ ass didn’t really break the internet, but we can! Will you join me? Please send a request to the facebook page, hashtag endautismnow to be part of this massive event to help end the autism epidemic.
Thank you so much
#ENDAUTISMNOW”

Here’s my response. I really hope you have a chance to watch and interact with me.

-Margaux

Two New Videos!

Am I an AUTISM Expert? No.

I remember watching a CBC Documentary “The Trouble With Experts” back in 2015. http://www.cbc.ca/player/play/2651996758 

It essentially outlined how anybody can call themselves an expert. You didn’t need any kind of accreditation to utilize this title– You just COULD. Now, that got me thinking about self-proclaimed Autism Experts, yeah, you may know the ones. They are bright-eyed and bushy-tailed and able to create a profit off of this. I’m certainly not talking about Amythest Schaber who I have the UTMOST respect for. (so please, don’t think that for a moment!) I’m talking about the ones who actually attend talks and tell people how to profit off of their different abilities and have acquired a mass amount of social media followers. I want to make one thing inherently clear: I AM NOT AN AUTISM EXPERT. I will begin to preface my videos by giving a little schpiel about this. My views, my opinions, yada-yada-yada. I’ve been asked for advice and I try to make sure they know that I, in no way, have any kind of training or expertise. I just live by experience. I want to share my story in the hopes that people relate with me but don’t go thinking I’m some kind of shrink. I do this blog because I love writing, taking photos, making videos and trying out things in my very own way.

If it’s too good to be true, it probably is. ALWAYS ASK QUESTIONS. It’s more than OK to be a skeptic.

-Margaux

ask blackboard chalk board chalkboard

Photo by Pixabay on Pexels.com

2 NEW Videos!