Don't tone police Autistics

As always, I want to put out a disclaimer:

These are MY PERSONAL VIEWS. These belong to me. Other Autistic folks may agree and some may disagree.

I wanted to talk about something that’s been really unnerving lately which is: Non Autistic Parents of Autistic Children sharing imagery and inspiration porn that is very harmful.

As an Autistic person myself, I feel as though attempting to bridge the gap with Autistic parents is a very important stepping stone to creating unity and setting their Autistic child up for success in the future. Assisting them with the tools needed to make sure that hateful imagery, improper terminology and ableism is eliminated. However, when Parents of Autistic children and their friends chime in and belittle, berate and negate the work of an Autistic person, this is moving backwards.

A few days ago I saw this image come up on my facebook feed. I was dumbstruck.

It got widely shared by this father who I believed I was friends with and he tagged his wife and said his child would love it. I pointed out 2 very prevalent things that are troublesome:

  1. The puzzle piece is a symbol of hate 
  2. Autism, or being Autistic IS a disability however–there’s nothing wrong with that.

I even linked an article and mentioned how I create content on the subject. Two friends of this father chimed in and essentially told me that just because I create content and cite sources, doesn’t mean that it’s true and that I should allow this father to be happy. I explained how I want their child to be set up for success in the future and that I am only trying to be an ally. I wanted to provide information as to how these things were harmful and that speaking over an Autistic person when they are trying to HELP truly doesn’t help anyone at all. I also mentioned that, at it’s core, it is incredibly ableist and problematic. 

No one defended me. None of my Autistic friends were able to even come and assist. Although the facebook post was public, the comments were not open to everyone. Eventually I gave up and I deleted this father from my friends list. He had ample opportunities to take this as a learning opportunity and chose not to. He also did not hold me in any kind of regard because if he did, he would not have allowed me to get attacked the way I did. I can only hope that his child gets the kind of support that he needs because if how I was treated was any kind of indication, I have a reason to be worried. 

If you are a parent of an Autistic child and you are looking for help, here’s what I can suggest:

Do not take content creator Daniel Jones of The Aspie World as fact. He creates sensationalized content that is, at the source, his income. He very rarely (if ever) cites sources for the material he creates and is not an ally to the rest of the Autistic community. I have even been sworn at by his content manager before and I have created 2 react videos. Please DO NOT utilize his advice to assist your child.

Reach out to Autistic adults – the ones that have your child’s best interest at heart. We can be the best resources available as we have lived this. Also, I do not create content for money. I do this from my heart because this truly gives me purpose in my life. 

Do not negate Autistic voices. Allow yourself the opportunity to learn from us. We are the best allies for your children and, for the most part, we want to impart our wisdom and create change. If anything, we want to help. Obviously i’m not speaking for everyone.

I hope this shed a little bit of insight on some of the struggles we face on a daily basis. It’s truly not easy but by listening to Autistic people and truly taking in the things we say is a great step to unity, change and acceptance for all.

Aut-Ish: Episode 10 – Art (Special Guest – Margaux Wosk)

I was featured on the AUT-ISH PODCAST! Have a listen or read the transcript. Thanks Onikage!

Aut-Ish

Woo! Episode 10 is live on Podbean! Also accessible via Itunes and Spotify!

Click “Continue Reading” to access transcript provided.

View original post 3,631 more words

Multiple things to discuss!

I created a new video on a couple things that I felt needed to be addressed:

My facebook page, facebook.com/madebyautistics was hacked. My one other admin and two mods have been removed. Facebook is being useless so I had to rebrand entirely and create a new page over at facebook.com/madebyautisticsgroup.

I was featured on CITR’s ALL ACCESS PASS. You can listen to me here: https://www.citr.ca/radio/all-access-pass/episode/20191030/ My Kickstart Disability Arts & Culture speech is at the 34:00 mark and my interview from the PosAbilities Inclusion Art Show is at the 16:15 mark.

These have been added to my shop at http://www.etsy.com/shop/retrophiliac

In addition to the four plaques that have been happened, there’s also all my holiday cards too. These are just a few examples:

Thanks to my Kickstarter backers who made these cards a reality, I was able to pack up all these cards and they will be getting distributed between 3 cat welfare organizations. They will then be able to sell and/or use the cards and keep the profits. I also am thankful that it will be an opportunity for more cat lovers to see my work.

Welllll that was a lot to cover.

Thanks for reading!

The Blue Divide

I firmly believe you can not attempt to “reclaim” images that are triggering to others.

Furthermore, I am a brash and outspoken individual that doesn’t have a reputation to tarnish and therefore I do not back down or mince words when it comes to calling out something that I think is grossly offensive.

I’ve seen this a few times now, people claiming to use an image first and then continuing to use said image with the negative impact and triggering effect already in place from it being used for years by another corporation, company, organization or entity.

I’ve written about related things in “An Autistics Guide To Corporate Social Responsibility” which provides a great resource for those who might want more information on how to create a favourable campaign while being considerate of Autistics.

With all of that being said, there is a DEFINITE divide in the “community”, I created this image, youtube video and podcast about it. I hope you have a chance to check it all out below.

There’s lots of links in the youtube description as well. Just click the video.

Thanks for reading, watching and listening!

Update

My speech on September 28th went particularly well and I wanted to share it with all of you:

My kickstarter ended and right now it’s in the stage of collecting payment. Once I get the cards and fulfill the orders, I will be donating some to various animal welfare organizations to help raise money for them. I will also be listing some on etsy as well! I’m so pleased that the kickstarter was such a success.

I didn’t have the opportunity to protest Autism Speaks Canada, but I am hoping I can be there next year. I always talk about how they continue to silence Autistic voices, so it wasn’t a surprise when I went on twitter today to see that I was blocked.

I was talking about the Inclusion Art Show and that’s happening this Thursday. If you’re local to Vancouver, i’d love to see you there.

I have plenty more I want to write about but it’s late (or early?) and I can’t formulate anything else at this time.

Thanks for reading!

You know what’s more important than selling art?

Being myself and having the freedom to do so without people attacking me for it.

The last couple of days have been rough. The images above continued to spark a firestorm of negativity against me. I have been getting criticized from all angles. I have been told that I shouldn’t be mixing business and politics by a couple of people.

It’s funny, I suppose they’ve never read this blog. I’ve been very honest about how I feel about things. I’ve spoken out against issues plaguing the LGBTQ communities when it came to the former director of AutismBC. Why did I do it? I firmly believe that LGBTQ rights are human rights and that someone who is supposed to be representing Autistic people shouldn’t be speaking out against young children learning about sexual orientation and gender identity. That’s not okay. We’re supposed to be creating safe spaces for youth. I knew for a very long time about myself that I didn’t identify as feeling female (or feeling male) and i’ve recently come out as non binary which has been very freeing but also has opened me up to a whole lot of hate from people.

I guess i’ve been bullied for the majority of my life and i’ve touched on that in previous blog posts.

So i’m DEFINITELY for LGBTQ rights. That’s one thing people gave me hell about.

The second thing is my support for Greta Thunberg who speaks about the fact that she is Autistic (but has been formally diagnosed under the umbrella of Aspergers) and how powerful, inspiring and amazing she is! That alone had climate-change deniers and trump supporters coming after me. I can’t believe how many people are bullying a young person with such a fierce nature to create change in this world. They make comments like “She’s a sick girl” or “She needs to go back to school” which I think is just backwards. They talk about her [neurodiversity] like she’s sick, unwell, needs healing or is severely disabled. It breaks my heart–especially as someone who is passionate about creating change, albeit not at the same level that she’s been able to achieve and i’m focused on different topics.

The third and final thing that people were getting upset with me about is the fact that I am pro-choice. I firmly believe in “my body, my choice”. I am not going to decide what other people do with their bodies! That’s none of my business. I have written two articles about being childfree and how I believe in overpopulation, that we’re destroying our planet (so you can see why I support Greta so much!) and that I never, ever want to have kids. I am sure I have some kind of gender dysphoria and if something were to ever grow inside of me and take over my body, I would be in a much deeper depression than I already am dealing with. I’m still thinking about getting my tubes tied but not everyone has (or wants) that option. I don’t need political figures deciding what is happening in my uterus. That’s just not okay.

I count my lucky stars that I am a Canadian and I have the rights that I do because I am truly privileged to live here.

So, back to the title of this article:

I’d rather be able to express myself freely than make another CENT off of my artwork. I am not compromising who I am and I shouldn’t have to be subjected to people freaking out at me if they don’t agree with me. I believe in LGBTQ rights, I believe in climate change, I am pro-choice and I am non binary.

“Don’t mix politics with business” someone said.

You know what I say?

Say that to Trump.

Say that to Chic-fil-a.

Don’t say that to me.

(I would like to properly attribute these images to their sources but I am unable to find them through google image search. If you know the creators, please let me know so I can properly credit them. Thanks!)

It’s a mood, for sure.

Trying to see through the thick cloud of anxiety and depression is no easy task. It’s a huge, huge burden to bare. The flashbacks have become more repetitive, they feel deeper. Each time I fail, I feel those traumatic events seeping back in and filling those gaps where hope once was. It is a situation full of despair.

I’m so lucky to have these cute, silly beings in my life though. They make it all worth it.

I should be happy or at the very least feeling fine. I think part of the disappointment is due to the fact that I really thought the article on The Mighty would perform better. I thought it would drive people to my website and to my shop, but the views and interactions have been fairly dismal.

The hits on my Etsy shop have totally decreased too. I heard there’s something going on with an algorithm to do with the people that don’t have free shipping or don’t offer it on all their listings. It’s making them less visible. I know for me that when i sell original pieces, shipping is included. It’s everything that’s made by a 3rd party that has shipping separately.

I also should be pleased with myself about having my speech coming up later this week and being approved to be a consultant about issues surrounding mental health and Autism–and yes, I am looking forward to creating change, but i’m also the poster child for those issues. So, I guess in a roundabout kind of way, i’m going to really be able to reflect on my experiences and create change. That’s the silver lining.

I wanted to share some images that my customers have shared with me, which is pictures of their purchases from my etsy shop. This helps keep me going, but sales in the last while have been so dismal. I’m also upset because the way advertising works on etsy is that I paid 4.80 American to get one person to click on one item that they didn’t even buy. So frustrating. I’ve heard better things about facebook ads but i’m just not even sure how to go about it. Seems when I talk about business, there’s people that genuinely want to help and then there’s people who poach on my lack of experience and try to manipulate me to pay them. I guess that’s another business strategy–but it’s one that I don’t want anything to do with.

If I can bring joy to others, even though i’m suffering, well.. I think that’s a way to turn something negative in to something positive.

I tried creating a new plaque that says “cats make life purrfect” but the cats I drew look terrible. The two wood signs I was happy about completing, haven’t really seen much traffic either. I thought they’d be a bigger hit.

My holiday cards are also still up for pre-ordering at a reduced rate. Hoping to have my hands on those the 3rd week of October, ready for shipping.

Greta Thunberg, a climate change activist and fellow Autistic has been taking quite a beating online. It really upsets me that people say such horrible things about her. I think politics are a main driving factor for people to be so hateful in this world. I tweeted about the honesty of Autistic people and how we’re fact based and it definitely goes for her too. Actually, this quote of mine says it all:

So many opportunities

You might have found my blog through the amazing article written by Renee over at The Mighty and if not, you can read that here!

I have been creating art for as long as I can remember.

I also had a fasciation with running a business. When I was younger my uncle actually gave me a very memorable birthday present. He gave me some business cards he made for me, file folders, an open/close sign and one of those receipt books with carbon paper.

Fast forward to 2019 and i have been lucky enough to find success through my etsy store. I recently added this design:

This wasn’t my first taste of business, though At around 15 years of age, I was reselling vintage on ebay. This has always been something i’ve been super passionate about.

Since i already struggle socially, I am constantly leanring new ways to cope and interact with people.

I recently got accepted to a local artist collaboration group and I feel so lucky that I can help others, get their help and meet new people. It’s been so perfect for me and I look forward to the next session.

I also will be speaking at Kickstart Disability: Arts & Culture’s 10×5 at the CBC Vancouver on September 28th. I have my speech ready to go and images selected.

The final thing is that I will have 4 pieces displayed at the Inclusion Art Show in Vancouver on October 10th so if you’re local, it’s a chance to own some of my works.

I can’t believe how busy i’ve been and I wanted to thank everyone for continuing to support me.

“…And it’s preying on my mind

…That there’s nothing left in my hands but time
Time don’t really care if I carry on.”

I have a few things on my mind so I figured it would be important to get it all out in the open.

Sometimes people send me an image pertaining to Autism with the best of intentions and yet the imagery is so widespread that the notion of it being offensive fails to cross the mind of the person sharing it. I do my best to write about these things in my blog but not everyone takes the time to read my articles. 

I was sent an image of hands in a handshake position that had one of the hands being disgustingly adorned by a rainbow of interlocking puzzle pieces with words like “awareness” placed over top of the neutral/skin-toned hand. 

Autism Daily Newscast

Immediately, a wave of frustration with a dash of anger washed over me. I thought I had made it very clear how I felt about these words and images used. I had even posted this image a day prior:

I had responded with a numbered list of how generally we (Autistics) don’t like skin to skin contact, that the puzzle piece is offensive and that we do not need awareness. I also linked an article titled “the ableist history of the puzzle piece”. The response I got surprised me. It was not taken well. I had to explain that Autistic people are generally fact based and that my attempt to educate had no malicious intention.

I can not sit idly by and not say anything- that just isn’t in my nature. 

On another note, I am in the process of updating my sales terms on Etsy in as many places as possible.

I am not sure how many people know about print on demand but it is a service that I utilize for the majority of my offerings.

Here’s how it works:

I upload my artwork to their website and I configure it on a number of products. The website creates a very realistic looking digital mock up of said item. I add the price, edit the description and list it on my Etsy store. The item will say “ships out of the United States” or sometimes China, depending on where it is manufactured. 

I would say that 95% of my customers live in the USA. It didn’t occur to me that “ships out of the United States” is not enough information in regards to duty. 

I purchase a lot of things from online American retailers and I also live near the British Columbia / Washington state border. Duty is something I always consider and take in to account. I have even been sent promotional items for review and had duty slapped on.

I will be adding “This item ships out of the USA. I am not responsible for duties, shipping and exchange rate incurred” on each listing. I have nearly gone through two out of five pages of listings so far. My laptop can’t handle it. 

I also need to express that some people have perhaps attempted to reach out to me through various channels and I am not always quick to respond. This is because I am still going through a lot of personal things and I am doing my best to prioritize. However, I am under a significant amount of stress and I am having a very difficult time viewing things accurately because of how clouded my thought process is. Anxiety is not easy to deal with.

I am doing my very best and trying to cope in a way that I am still able to be productive. I just need a bit of room to breathe. 

Exposing The Aspie World

I am one of those people who seem to have the ability to cut through the drivel that is perpetuated by others.

I saw right through Daniel Jones of The Aspie World. I knew that there was something about him that didn’t sit right with me.

I have created two videos where I react to him. His content is truly repulsive.

1. Sensationalism

His content is chalk full of sensationalism, which is defined as “(especially in journalism) the use of exciting or shocking stories or language at the expense of accuracy, in order to provoke public interest or excitement.”

He uses clickbait titles which plays off the very same theme, essentially taking Autism to a level where it becomes something fresh, new and exciting – at the expense of others. He also pairs up with other YouTube creators who have the same thing in mind. I recently heard that he made a point of insulting “negative” creators at an event tied to the creation of his videos.

2. Self fulfilling prophecy

He creates content to boost his ego. He can’t take critiques from anybody. If you tell him he’s doing something wrong, you’ll be blocked very quickly.

There have been other people in the #ActuallyAutistic community who have called him out and some that have even taken the time to private message him to express their feelings about his content, only for it to fall through the cracks and be disregarded. He has also written a book about a religion (he may or may not) have created and he also promotes his merchandise through his videos.

Edit (July 11th 2019): It’s also alleged that Daniel Jones is even more phoney than he lets on. User “yourfavehatesautismspeaks” on tumblr has added some very interesting talking points to the conversation.

Alex Watts is his producer and “community manager” who decided to send me this on twitter. It’s incredibly unfortunate that they will stoop to tactics like this as a means to communicate with me.

July 12th, still being heckled by Dan Jones “Community Manager”, who fails to uphold himself to any professional standards.

3. Misinformation

If you have the ability to watch my react videos, you’ll notice very quickly that he fails to cite sources for his information. When talking about Aspergers VS Autism, he prefaces it saying that it doesn’t apply to everyone, yet he makes generalizations. Autism absorbed Aspergers in 2015 — Four years before his video came out. He said he will be updating the video, but it’s not like he didn’t have the new information at the time of creation. I also am baffled at a lot of the things he says and he continues to perpetuate his information as fact. It’s not factual. If you can’t cite sources and you can’t show proof to people, you’re only as good as your word.

His videos are presented at different educational events which is a further way to perpetuate fiction.

He has also said that there is a lack of Autistic female youtube creators, which also is not true. Perhaps he said this because he’s not a fan of those who have challenged him and suggested that he change.

Emma Dalmayne created a video back in October of 2018 that I highly suggest you watch.

4. Preaching to Autism Moms

A vast majority of his audience seem to be Autism “Warrior” Moms. These are the type of people who generally won’t listen to #ActuallyAutistic adults in favour of people who are telling them what they want to hear. Daniel Jones has found that they are the perfect audience for him and he uses terms that are generally not well liked by our community like “WITH Autism”, “With Aspergers” — which I find a lot of these parents use. Plenty of them are Autism Speaks supporters as well and won’t hesitate to attach a shiny blue puzzle piece to their social media handles.

In closing:

If you’re not going to listen to the community you supposedly represent and are part of and you continue to promote yourself with the basis of your content being completely untruthful, manufactured, sensationalized and self-gratifying, you’re not helping anyone.

I also believe it’s so important to give a voice to my fellow Autistics and I have done so in this post. It’s not just me who is striving for change and proper representation. IF YOU HAVE AN AUDIENCE, DO SOMETHING GOOD WITH IT!