- Article Published
- New Video
3. Etsy Listing
I wanted to share an article I wrote for THE ART OF AUTISM! Check it out.
Artist Margaux Wosk looks at different art models that actually hurt autistic artists Ableist art models don’t help us Autistic artists
I want to reiterate that these are my own views and do not necessarily reflect the views of others.
You’ve probably noticed that my blog has critiqued certain sponsorships that I have found troublesome. I wanted to come up with something that would be a good, sharable reference point.
One :: Imagery & Colour Usage
If you want to create a favourable first impression, utilizing a puzzle piece and/or blue immediately raises red flags. Firstly, the image and colour combination evokes negative thoughts of Autism Speaks, which is known for their harmful PSAs, “Cure” culture and questionable distribution of funds. Secondly, The puzzle piece implies that there is something is missing or needs fixing.
Two :: Words/Terminology
When Autism is used as a negative or scare tactic, that is not considered to be favourable.
“Affected by Autism”, “have Autism” and my interaction with their social media team interjected the word awareness in to our conversation twice. I have also noticed that they switch from capitalizing Autism to not capitalizing it. There is no consistency. Other promotions have also used words like “hope” which is demeaning and not at all empowering.
Three :: Transparency
In reference to the case of beer, they mention things like “Autism now affects 1 in 68 children with boys being four times more likely to have autism than girls. It is the fastest growing developmental disorder with 1% of the world’s population affected by Autism.” without citing any sources. They have also said “…remains dedicated to supporting Autism research in Canada. Since 2012 more than $600,000 has been raised and donated towards better understanding Autism and how to effectively diagnose and treat the condition.” – this time they have left out exactly WHO is running this research. They have also failed to provide the information of what would be an effective way to diagnose and treat the condition.
Four :: Representation and consultation
When running a promotion: REPRESENTATION matters. Most of the companies I have reached out to have been individuals at the top of the business with an Autistic child. I have had some really negative interactions with affluent parents pledging money to Autism Speaks, business owners who run AUTISM AWARENESS promotions with a portion of the funds going to different organizations and companies running contests where they not only hire a non-Autistic artist, but they utilize the harmful imagery I mentioned in section 1.
If you want to do right by Autistic people, go on to twitter and search #ActuallyAutistic to see the voices of Autistics. You can also look up Neurodiversity and Neurodiversity consulting. You’ll find yourself someone who is incredibly qualified: an Autistic person.
It’s so important to embrace what Autistic people have to offer and this is the proper way of doing so – instead of creating a very offensive campaign.
Five :: Responding to Customer complains
If someone complains to you, instead of explaining yourself immediately, please listen. Please pledge to change and give ways you plan on improving the campaign if you choose to run it again. Understand that yes, if you have an Autistic child that they will grow in to an Autistic adult–We are some of your greatest resources. Don’t talk down to us. Don’t lessen our complaints with ableist speak. Listen. Commit to change.
Six :: Suggestions
A few things a business can do:
I tried to ignore the negative things they do and the incorrect language they use but I was confronted by them, in person and was completely blindsided that I would be in the same building as them.
I will give you some backstory—I participated in a “Youth with Autism” conference which already was problematic. I don’t believe I was made aware of the events name until late.
I got to the event and saw the Canucks Autism Network setting up their table. My heart sank.
They had plastic bracelets, pins and stickers to give away to the kids. That alone disturbed me: it’s a great way to further their message to unassuming children who don’t see anything else but free stuff. That way, their disgusting puzzle piece logo gets a much further reach. It’s almost like indoctrination.
At that point I started to feel sick and anxious.
I let one of the event coordinators aware of the fact that I was incredibly uncomfortable with them being there. I told her that their logo, the association with Autism Speaks and the use of incorrect language was not okay with me.
She assured me that they wouldn’t come in contact with me. I still didn’t want to be around them and I had a bad foreboding feeling. It lingered and seemed to be warranted.
I have instructions to the kids in the art room for the project I was leading. I saw the two CAN employees making their way in to the room. At this point I started to feel increasingly more uncomfortable. They continued to come closer to me.
Ryan Yao, who I was able to identify through LinkedIn, is the director of strategic partnerships at CAN. He is the one who approached me. I did not want to talk to him at all.
The conversation went something like this:
RYAN- So, you run art workshops?
ME – Well, I haven’t run one before. This is my first.
RYAN – Is this something you plan on continuing?
ME – Maybe next year for this event.
RYAN – Is it something you would be interesting in doing (with us)?
ME – It’s a conflict of interest because you’re associated with autism speaks.
RYAN – Oh, I understand.
Then he walked away.
I was so shaken up and it felt like the conversation lasted forever.
I have called them out multiple times prior to this on Facebook, Twitter and instagram.
I really feel that it was unfair that I was subjected to being in the same place as them. Next time I participate in an event, I am going to make sure I am briefed on every detail possible so it does not happen again.
This is not the first time I have had a problem with the Canucks. Their eyewear sponsor, image optometry insults customers on yelp. It’s happened to me before. It’s incredibly contradictory to support Autistic children and be associated with a company that bullies people and continues to be unethical with their business practices.
To break it down:
1. they use improper language
2. They are associated with Autism Speaks
3. Their puzzle piece logo
4. Their AWARENESS campaign
5. Their blatant disregard for Autistic voices
Something needs to change. It’s very unfortunate that private organizations can regulate themselves. We need more government funding and better, more ethical practices that have Autistic people at the forefront.
A dream came true of mine. I was on the radio on my favourite network, CBC (Canadian Broadcasting Corporation). I met Gloria Macarenko and she was so lovely! I am a HUGE CBC fan and I couldn’t believe I got to go in the part of the building where they broadcast the news, both television and radio.
The radio program was all about a Youth with Autism conference taking place tomorrow and I will be running an Art workshop. This will be the first of it’s kind for me and hopefully not the last.
If you’re interested in hearing me on the radio, the link is here.
If you happen to be outside of Canada, you can always download a free VPN like ProtonVPN and set your location to Canada to be able to listen!
When a brand like Mortgage Tree runs a contest and they utilize an Artist that is NOT AUTISTIC for a campaign, red flags are raised immediately.
A contest is being run and prizes are available to those they choose. There’s not many restrictions as to who can enter.
When I say this has a lot to do with branding, Crystal Salamon deleted her original case study which revealed that only about $60 has been spent on paid ads when this campaign was run in 2017. That’s right: she’s been at it for years.
I have posted negative reviews on both Crystal’s facebook page and Mortgage Tree as well. With Mortgage tree, that lead to a very uncomfortable conversation through private messages which I try to avoid.
They’ve also VINYL WRAPPED A CAR (which was revealed after this conversation)
For more information on this campaign:
Of course, there’s plenty more links that include all the twitter and instagram pages as well as a search for their hashtags. They’ve got all their bases covered. The youtube videos are pretty bad too.
I’m laying in bed right now, trying to desperately turn off my active mind. It’s nearly impossible to do.
As April 1st comes to a close, i’m already struggling to come to terms with this month and the ignorance i’ve already encountered. Twitter is the place to go when you desire controversy and i’m no stranger to that.
I reside in British Columbia and we are synonymous with the NHL team, The Vancouver Canucks. Many people find them to be a source of pride and optimism, even to go so far as to say they represent Vancouver. I believed that for a long time until I became aware of the Canucks Autism Network.
It’s a great thing to want to support Autistic people but it’s another thing to utilize the puzzle piece and incorporate material sourced from Autism Speaks. They also use strange language like “families with autism” in their marketing materials. I feel like the #1 resource for those who organize these events and create the foundation for these networks and charities should be an Autistic person or even a group of Autistic people. To me, that simply is common sense.
The way these events are structured, there is a strong emphasis on family and children. A lot of the time Autistic adults are left out and not even considered. It’s as if they believe Autistic adults don’t exist. Hello! We’re here. We exist. We have opinions, thoughts, feelings that we would love to share with you. We’re human too!
I also saw that they are working with Microsoft’s Vancouver Office. For a while, I wanted to reach out and collaborate with Microsoft and I couldn’t even find a viable way to contact the right department. I was given a telephone number, I tried to exhaust internal contacts and I couldn’t get to the right person. I wonder if it’s purposely inaccessible? Microsoft has a program to hire Autistic people and yet the company is virtually unreachable.
Between Canucks Autism Network, Autism Support BC and Surf’s Up For Autism, amongst many others, we continue to be coloured blue and puzzled. I feel as though they don’t know the negative connotations or simply don’t care. If you want to help us, ask us. Put it out there on twitter. Have a focus group with Autistic people of different ages. ASK US FIRST. If you’re running a contest with a colouring page for Autism, hire an Autistic artist.
It’s ALMOST HERE GUYS, the time of the year I absolutely freakin’ hate. Did you know that Autism Speaks even has a whole guide of how to use their logo? (They took down the website but I linked a cached version because they can’t outsmart me!)
There’s also pretty crude donors, ignorant ambassadors, poorly thought out sponsorships and William Shatner’s gaslighting of Autistics on Twitter amongst all the things we already have to deal with.
Here’s what you can do instead:
Here are some pertinent links about why Autism Speaks & April is so bad:
for the Made By Autistics Community! I am starting a website and may buy a domain name soon (if I can afford it!). I would love to feature more people.
Join us on Facebook. The community page will have more information on how to submit.
After being beaten down this week (see my last two posts) and feeling absolutely hellish, I wanted to do something good, something creative and something NICE!
I have found there to be a severe lack of opportunity for my Art locally and I can only imagine that other people have felt the same so I created the Made By Autistics Marketplace on facebook to give people the chance to sell their art, wares and other things they’ve created to anybody willing to join the group. I coined the phrase “By Autistic People For Everyone” to really outline what i’m going for.
I would love for you to join us at https://www.facebook.com/groups/MadeByAutistics/