The stress of Autism Advocacy

I’ve said it before and i’ll say it again:

I’m so ready to throw in the towel.

I felt like my contributions were worthwhile and at this point I feel like the stress and fighting is far outweighing the benefits and my mental health is suffering. I am at a low point.

If the goal is to help folks, we should be understanding that the worst thing to do is penalize people.

I’m unsure what happened to the ideals of kindness, speaking to people with respect and understanding. It seems like this has all fallen by the wayside. Instead, there’s folks out there with sheer anger and frustration, taking it out on everyone for the world to see.

It’s sad to know that we’ve come to a place where instead of activism, advocacy and helping people, we’ve been reduced to videos where folks are naming names and creating a cult or pact mentality against folks in our community.

Is re-victimizing and triggering folks helping anyone? If we are to be helpful, why is calling out people in videos acceptable, acknowledged and praised? This should never be the baseline.

The focus has been taken away from information, knowledge and advice and has turned in to dictatorship with numerous folks joining in on the bullying, further strengthening the ability to dog pile and driving them to their lowest point – driving them to contemplate suicide.

The sad thing is, it’s going to happen. Someone is going to end up harming themselves. I know that I was made to feel like an absolute piece of human filth. I felt like crying. I was triggered, I was brought to panic. I also was made to be unable to seek emotional help that I was in dire need of.

I’m not trying to argue. But at what point do I have to say “enough is enough”?

Well i’ll tell you:

When the emotional toll becomes too much to bare and helping people is overshadowed.

We shouldn’t be bullying folks out of activism and advocacy. If our goal is to help people, why are so many folks being driven to mental breakdowns? Because the opportunity to listen has turned in to the opportunity to dictate.

I’m not putting myself through this. I’m beyond sad. I’m not trying to argue, i’m not trying to fight, i’m not trying to start a war. But this is eating away at me and the moment i’m told to stay silent becomes the moment I have to speak.

Puzzle Pieces & Autism Moms

I have wanted to write about this for a while but I have been putting it off.

I wanted to address the issue with “Autism Moms” or “Autism Parents” and the exploitative tactics that sellers of Puzzle piece merchandise utilize to gain sales.

I reached out to a parent run company on etsy that was selling a sparkly puzzle piece enamel pin in honour of their Autistic child. I tried to educate them and tell them that it is a symbol of hate and eugenics, and instead they felt threatened by me and told me if I continued to contact them, that they’d report me to etsy.

@retr0philiac

Informal video. Read the ableist history of the puzzle piece. Please no pro puzzles! #autism #autistic #autistictok #actuallyautistic #neurodiversity

♬ original sound – Margaux – retrophiliac

There’s over 6,000 listings for the search query of “Puzzle piece Autism”. These are sellers who are EXPLOTING THE IGNORANCE OF FOLKS WHO DO NOT KNOW IT’S A HATE SYMBOL. Chances are, the people selling these items are profiting off this. They probably know how harmful this symbol is and yet they continue to perpetuate it because it’s PROFITABLE.

I’m unsure of how many folks don’t see the problem here. Profiting off these symbols and selling them to unsuspecting individuals is wrong and again, incredibly exploitative.

I’m in a facebook group and a mother had asked about her “Autism Mama” bracelet which was adorned with puzzle pieces, and she was quickly – and swiftly educated.

I ended up having an “Autism Mom” slide in to my private messages and DEMANDING I educate her on the subject. There was more than enough information in the initial thread. She weaponized an Art of Autism article against me about someone who was pro-puzzle piece (but denounced her support in the beginning of the article). I had asked The Art of Autism to amend this article to include pertinent articles and was met with an uncomfortable misunderstanding. At this point, I will no longer associate myself with The Art of Autism.

Make better choices, buy from Autistic people (Made by Autistics Marketplace is a great resource), support the rainbow spectrum infinity symbol and do your research.

A note: If you’re a PARENT of an AUTISTIC CHILD, Do -NOT- co opt their diagnosis as your identity. This is NOT your identity. Don’t talk over Autistic adults. Listen instead. Remember: Your child is going to be an ADULT SOMEDAY. Wouldn’t; you want them to be able to help others and feel empowered?

Also: don’t expect Autistic adults to be a certain way or to provide endless advice. We don’t owe anyone (especially parents) anything.

If you need more information about this, please visit:

Don’t forget, I have a NEURODIVERSITY PRIDE COLLECTION. There ARE alternatives to the puzzle piece.

Aisle Period Underwear Review

As someone who identifies as non binary, getting my period is something that I don’t enjoy dealing with. I will admit that it’s MUCH better than the alternative (the alternative being pregnant, i’m openly childfree).

Continue reading

I designed these!

My updates have been becoming more and more infrequent and I am sorry for that! I have been so focused on getting these items up in my etsy store and promoting them as much as possible.

I now have black and gold Autistic identity stickers & enamel pins up in my store, and I recently wrote an article about my Neurodiversity Pride collection for The Mighty.

I hope you check out my Etsy shop if you’re interested in purchasing any of these items! Tell your friends 🙂

My art is up at Chickpea!

My art is up until October 30th at Chickpea Restaurant in Vancouver at 4298 Main Street.

I was very excited to have some help from my roommate to install my work:

If you’re interested in seeing more of my art, check out my etsy shop at retrophiliac.etsy.com!

My Neurodiversity PRIDE COLLECTION IS LIVE!

Learn all about it here or click Neurodiversity Pride in the menu bar!

Former friends, loyalty and Being Autistic

I seem to utilize my blog at times where I feel really emotional, or post meltdown. Sometimes I feel calm and serene while updating but most of the time I am dealing with inner turmoil.

Photo by Lisa Fotios on Pexels.com

Periodically throughout the years, someone who made negative comments about my mother and essentially ghosted me over a decade ago, has constantly reached out to my family members to engage in friendly banter — all while choosing to ignore me with every attempt to find out what I did wrong, apologize and clear the air. This person would press ‘block’ nearly immediately.

I wasn’t trying to recreate a friendship we just had (which is what they thought I was trying to do), I was merely trying to reduce or eliminate the negative feelings they had towards me.

I thought this was the right thing to do.

Seeing the comment they made yesterday (on my family members post) was no different. I sent an apology, said their kindness ‘didn’t go unnoticed’ and attempted to reach out. I had done this periodically throughout the years in the hopes that they would grow as a person, forgive and ‘be okay’ with who I am as a person. I’m not sure why I would be lead to believe any differently when the example of their behaviour that I was presented with was kind, conversational and engaging.

Well, I was wrong. I was very wrong. Once again, I misread the social cues. I reached out and got blocked.

I went to my other (art) account and then asked them to “please do not interact with my family anymore.” I had told my family member how this person had been treating me throughout the years (with visual proof, this time) in the hopes that they would stand by me, support me and no longer associate with someone who had been treating me so disrespectfully.

The response I got was probably one of the cruelest, most judgemental messages I have ever received in my life. There were comments about me being negative, toxic, throwing a temper tantrum, how this person is in their 30’s now and they’ve grown and that’s due in part to the fact that I am no longer in their life, that my attempts to reach out (and in my words, reconcile) were harassment. This was two exceptionally long messages. I then explained that my family member had read the words they told me, and finally they told me to ‘go F myself’ and that I was ‘toxic AF’. This person also chose to misgender me. If they would have taken the time to even learn about my Autism diagnosis, they would have seen how these comments were rooted in ablism. I did not have my diagnosis until 5 years ago. I didn’t even self diagnose at the time we were friends.

Now, let’s not forget that people change a whole lot in 12-14 years. I certainly am not the same person I was in my late teens/early twenties. My main focus is doing what I can for the Autistic community and supporting cat welfare organizations when I am able to. My mindset is “What can I do for others?” —especially in times of distress.

The part that hurt the most is that this lead to a huge argument with my family member who was incredibly defensive and refused to cut this person out. Fortunately, this former friend of mine blocked my family — but in the end, it wasn’t really about the former friend. It was about remaining loyal to family. It was about being supportive of your family member when someone else has chosen to spew words that don’t; harbour any truth; words that were made to hurt.

I cried a significant amount last night. I had a meltdown. I felt like I couldn’t see, like I couldn’t breathe. None of the words I was saying (and the way I was explaining the situation) seemed to have resonated with those around me. I felt wholly exasperated.

I was essentially crying out for much needed emotional support and I was not getting it from those around me. I was not getting the “I care about you. This person treated you poorly. I love you, I have your back. I wouldn’t ever associate with someone who treats you like this. This is showing who they are as a person and it’s not reflective of who you are.” None of that. I got this kind of support from my friends, albeit – online. That doesn’t negate how thankful and gracious I was to each person who was willing to listen.

The moral of the story is: remain loyal to your friends and family. Stand up for them. Don’t allow them to be bullied by others. Don’t sit idly by and be complacent. Not involving yourself is essentially saying “hey, this behaviour is okay.” it’s not saying “i don’t want to be involved in drama.”

Engaging in friendly banter with someone who bullies your relative is a way to continue to re victimize and trigger them — yes, it is even worse if they are Neurodiverse. We need more allies. We need less people to be complacent with ableist behaviour and more people to stand up and say “this isn’t okay how you are treating them (my family). I don’t feel comfortable engaging with you unless you make amends and express kindness towards them.” either that, or swiftly blocking them without allowing pride to get in the way.

That’s all I wanted.

I’ve got those self-isolation blues!

A new piece of art – “Bright Skies”

As usual – I have been slacking when it comes to writing and updating this blog. That’s a little unbecoming and not up to the high standards I reluctantly uphold for myself.

It’s been hard and my energy has been fluctuating. There are days where I am apt to clean and tidy up my surroundings and then there are days that are spend entirely in bed, sometimes accompanied by cookies.

I’m on a constant rotation of just a few things. Netflix, napping, eating, art and a minute amount of self care. I’m trying to focus more on that because I know how important it is for my mental health.

Some tasks are more difficult than others, including running Made by Autistics Community on facebook – a task that is emotionally draining at the best of times – it puts me right in the forefront of having to maintain some order and good reading comprehension. I’m not great at the comprehension aspect and I find that keeping objects orderly versus people is already something I obsess over. Throw emotions in to the mix and I sink, real fast. I make mistakes, we all do – but there’s one thing we can choose to NOT do – and that’s call people names. I had enough of this in my past (hurled towards me with a cold blast of anger, no less) and I don’t need to be triggered.

I’m thankful I have people I can speak to who have been supportive of me because I can only take so much criticism in one day. I burn out faster than i’d like. It’s been hard not having any physical affection or the inability to see my friends and hang out in close quarters. I realize that we’re trying to do our best as a whole to stop the spread of a really horrible virus and some of the things we can do are:

  1. Wash Your Hands
  2. Maintain Your Distance
  3. Be Nice

Three rules that could make a big difference. Hope you are staying healthy and happy!

PS. I also started a petition to make it mandatory to have ALL cosmetics be tamper-proof sealed. Could you sign it?

Autistics I like!

Here’s a video of some Autistic folx I really am fond of. I would also like to mention Onikage from Aut-ish & John Greally!

Also want to apologize for not having any new, wordy posts up. I haven’t had the mental capacity for it lately.

Video: The problems with some Autistic content creators