I never claim to be an expert. I am an Autistic Person who is sharing her experiences. Those are two vastly different approaches when it comes to providing insight as to what Autism is. There are people out there who are passing themselves off as experts and they are getting feedback from those who are taking it all in as fact. Please be careful! Perpetuating untrue stereotypes and misinformation does not help anyone. Do your research. Be skeptical, ask questions.
Happy New Years Eve everybody. I’ve had a pretty eventful past few days. Firstly, I submitted a WINNING ENTRY to No Frills – which is a budget friendly grocery chain here in Canada owned by Loblaws (Galen Weston). I came up with a catchy, tongue-in-cheek melodic jingle and it’s going viral. It’s nearing 100,000 views. Check it out right here!
I hope you have an amazing 2019!
This is a FUNNY (not) story. My Mother was doing some banking recently and overheard a Woman talking about an Autism walk coming up. My Mom asked if it was Autism Speaks and the woman didn’t know. Apparently it WAS autism speaks.
I took it upon myself to contact some notable sponsors who are ALL listed on their website.
This is the message I sent:
Hello Autism Speaks Canada Donor,
My name is Margaux Wosk and I am an outspoken advocate for Autistic individuals like myself. I wanted to take the time to tell you a little bit about the negative impact you are having on our community.
Autism Speaks is highly disliked and rather frowned upon by the #actuallyautistic community. We use the hashtag #boycottautismspeaks.
Autism Speaks wants to find a cure for us, they believe we should cease to exist and with their genetic testing and “research” –well, it’s all in the hopes that we should vanish off the planet. Eugenics, plain as day.
Only a very small fraction of the funds they raise goes to help autistic individuals, i believe 5 percent. The majority of it goes to research. We do not need a cure, we do not need awareness. We need acceptance and inclusion. Those are the most important things for us. Clearly, I would know since I believe individuals like us deserve respect.
We do not want a cure; we do not support ABA.
If you’re interested in better places to donate your funds, please consider the autistic self advocacy network or even our local Autistic Meetup Group. They are always in need of help.
To learn more about me, please check out http://www.navigatingjourney.com
I was recently featured in Black Press Medias’ online and press publications in regards to my art and advocacy and I spoke out against autism speaks. https://www.langleytimes.com/community/cloverdale-artist-finds-activism-for-autism-through-painting/
I would hope you would take this chance to respond to me and reconsider your support and financial contributions to autism speaks in the future.
Here’s a response I received from the top donor, who works for the Royal Bank of Canada:
I do not know how you got my email but please do not email me.
Hm, I wonder how I did that.
Invalidated by a neurotypical person, silenced and falsely accused of spreading misinformation… This is terrible and these are the people that are raising money for us to fail to exist. I’m not surprised by the fact I was just spoken down to and told to not email this person. Awful.
Silenced again, this time by a local childcare provider:
Silenced ONCE AGAIN by a donor:
if they don’t want their names public then maybe they should consider that their names are publicly posted on the autism speaks website?
OUR VOICES SHOULD MATTER.
Please signal boost this if you can.
We need acceptance, not awareness.
I have started a BRAND NEW Podcast called “Autistic Speaking”! Please listen here:
And my NEWEST Youtube Series “Margaux Talks Tea”
I would LOVE if you could let me know what you think of these two new ventures!
…then you wouldn’t support Autism Speaks. April is the CRUELEST MONTH. Get prepared to go #RedInstead
I am an Autistic Woman.
I do NOT need to be cured.
I do not need to be eradicated.
I am not a burden.
I am not diseased.
I am not in crisis.
I am not represented by a puzzle piece or the colour blue.
I say NO to Autism Speaks and you should, too.
Want more information? It’s as simple as googling BOYCOTT AUTISM SPEAKS.
I’m almost gritting my teeth as I write this. It’s always experiences that prompt me to go on these informative rants (if you want to call it that) and let it all flow.
I was recently contacted by someone who runs a charity event to benefit a local Autism Centre. She asked me if there was any way I wanted to be involved and immediately I got quite defensive and a bit angry. I should have controlled my emotions a bit better but it was seemingly obvious that she had not viewed any of my content prior to contacting me.
She told me they raised over 200,000 in the past for this centre with their different events. That’s all well and good until you see who one of the main sponsors is for the centre.
AUTISM SPEAKS CANADA.
Anyone who knows me or has viewed my content has probably seen how outspoken I am against them. Just look up “Boycott Autism Speaks” on google and you’ll yield 266,000 results! There are plenty of reasons as to why I will not be involved in ANYTHING that is remotely linked to them. I have values and self-respect.
The conversation went like this:
Do you really want to help the Autistic community? I’m always quite disheartened by the fact that so many of these opportunities are laden with no information OR misinformation. It makes getting the message of advocacy/activism/equality/rights much harder to convey.
If you want to donate funds, here’s some things you can do:
- Contact your local Autistic Meetup group and ask what they need
- Support Autistic individuals by purchasing their art or offerings
- Make a donation to http://autisticadvocacy.org
If you are reading this and you have more ideas of what would be essential to my list, please leave a comment or get in touch.