Why I am not okay with the puzzle piece for Autism: A response & counterthought

I posted this video to my youtube channel. I try hard to create a corresponding post so that it makes it a bit more sharable and I can add a bit more context.

Youtube decided to recommend this video to me:

I took it upon myself to make a response:

I felt it was incredibly necessary for me to explain what exactly is wrong with the video and why it’s so hateful. I also wanted to represent some of my #ActuallyAutistic friends and activists who are on the other side of “the blue divide” and explain that yes, there are other symbols out there that do represent us much better than the puzzle piece. Although my reach on youtube may be smaller, my voice is still loud and valid.

I have also covered this topic before on a few more blog posts.

Don't tone police Autistics

As always, I want to put out a disclaimer:

These are MY PERSONAL VIEWS. These belong to me. Other Autistic folks may agree and some may disagree.

I wanted to talk about something that’s been really unnerving lately which is: Non Autistic Parents of Autistic Children sharing imagery and inspiration porn that is very harmful.

As an Autistic person myself, I feel as though attempting to bridge the gap with Autistic parents is a very important stepping stone to creating unity and setting their Autistic child up for success in the future. Assisting them with the tools needed to make sure that hateful imagery, improper terminology and ableism is eliminated. However, when Parents of Autistic children and their friends chime in and belittle, berate and negate the work of an Autistic person, this is moving backwards.

A few days ago I saw this image come up on my facebook feed. I was dumbstruck.

It got widely shared by this father who I believed I was friends with and he tagged his wife and said his child would love it. I pointed out 2 very prevalent things that are troublesome:

  1. The puzzle piece is a symbol of hate 
  2. Autism, or being Autistic IS a disability however–there’s nothing wrong with that.

I even linked an article and mentioned how I create content on the subject. Two friends of this father chimed in and essentially told me that just because I create content and cite sources, doesn’t mean that it’s true and that I should allow this father to be happy. I explained how I want their child to be set up for success in the future and that I am only trying to be an ally. I wanted to provide information as to how these things were harmful and that speaking over an Autistic person when they are trying to HELP truly doesn’t help anyone at all. I also mentioned that, at it’s core, it is incredibly ableist and problematic. 

No one defended me. None of my Autistic friends were able to even come and assist. Although the facebook post was public, the comments were not open to everyone. Eventually I gave up and I deleted this father from my friends list. He had ample opportunities to take this as a learning opportunity and chose not to. He also did not hold me in any kind of regard because if he did, he would not have allowed me to get attacked the way I did. I can only hope that his child gets the kind of support that he needs because if how I was treated was any kind of indication, I have a reason to be worried. 

If you are a parent of an Autistic child and you are looking for help, here’s what I can suggest:

Do not take content creator Daniel Jones of The Aspie World as fact. He creates sensationalized content that is, at the source, his income. He very rarely (if ever) cites sources for the material he creates and is not an ally to the rest of the Autistic community. I have even been sworn at by his content manager before and I have created 2 react videos. Please DO NOT utilize his advice to assist your child.

Reach out to Autistic adults – the ones that have your child’s best interest at heart. We can be the best resources available as we have lived this. Also, I do not create content for money. I do this from my heart because this truly gives me purpose in my life. 

Do not negate Autistic voices. Allow yourself the opportunity to learn from us. We are the best allies for your children and, for the most part, we want to impart our wisdom and create change. If anything, we want to help. Obviously i’m not speaking for everyone.

I hope this shed a little bit of insight on some of the struggles we face on a daily basis. It’s truly not easy but by listening to Autistic people and truly taking in the things we say is a great step to unity, change and acceptance for all.

Van Dusen Festival of Lights

Firstly I wanted to thank Van Dusen for giving me the chance to bring my entire family! We had a blast.

If you’re in or around Vancouver, BC and you want to do something joyful for the holiday season, look no further than the Festival of Lights! With over one million lights decorating 15 acres, the scenery is sure to dazzle even the smallest of humans! With free rides on the carousel (my niece went on like 8 times!), a dancing light show, photos with Santa, food trucks and much much more – you are guaranteed to have a lot of fun! We did.

Don’t forget to share your images with the hashtag #vandusenFOL – Learn more about the event at: vandusenfestivaloflights.ca