What Happens When Autism Speaks Appoints A New Ambassador

Before any opportunity is offered to me, I always do my research. I search up the positives and negatives so I can make an informed decision. That seems to be common sense; at least that’s what I thought.

Occasionally, i’ll do a twitter search for “Autism Speaks” to see what kind of propaganda is being perpetuated. I’ll usually see parents, this running app (CharityMiles) that donates to them and merchandise with puzzle pieces for sale.

Yesterday was a bit different. The last big rift between the Autistic community and an outspoken supporter of Autism Speaks would be the whole Niantic deal. The Makers of POKEMON GO decided it would be excellent publicity to partner with the Autism Speaks Run and have their own family fun booth. They were met with outrage and rightfully so. Pokemon Go gave some individuals a reason to get outside and engage. I wasn’t one of those people, but there were other reasons given that made it seem like the Autistic community embraced it–that is, until, they made an incredibly rash decision without any research.

So, back to yesterday, I noticed there was a gamer by the name of Ash or Clash With Ash (CWA) who was incredibly excited to share the news of his ambassadorship with Autism Speaks. His video was complete with puzzle pieces in the background. What a lovely touch.

He’s even gone so far as to raise money for AUTISM SPEAKS, already.

We, the Actually Autistic community have been on it. We’ve let him know that this isn’t helping us – that it’s actually hurting us. Ash’s followers are commending him and don’t seem to be questioning him. I’m assuming they believed he did his due diligence and researched Autism Speaks before he went full out and posted all his puzzle-piece laden propaganda for them to eat up and praise him for. He’s been incredibly quick to thank his supporters and put us in the backseat. Part of me believes he thought this would be good publicity and paint him as some kind of saint because his late Brother was Autistic. Here’s the initial tweet that started this all.

If you take the time to scroll through his twitter, you’ll see the calm before the storm. I took it upon myself to let his followers know that his actions are the opposite of commendable-by informing them that Autism Speaks is not a good organization. I don’t recall any of them responding to me.

I’m not sure how this benefits him. Perhaps it gives him a greater sense of purpose and believes that because he has a platform and an audience, that he could bring some kind of awareness to a cause he says is so important to him. We don’t need that. We can advocate for ourselves without hiding behind the guise of a hate group. There’s also better organizations to donate money to, like ASAN.

If you wish to add your opinion and let him know that we don’t need him to speak on our behalf, his social media platforms are:

If you want to learn why Autism Speaks is so terrible, here’s a great list: A Roundup of Posts Against Autism Speaks

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It’s not easy – but it’s worth it!

I LOVE working on my blog!

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Photo by Carl Attard on Pexels.com

I will admit that it’s incredibly hard work and I face a fair bit of negativity and rejection. There has been a lot of positivity, as well! I can’t believe all the opportunities I have had and continue to have. It’s amazing!

With that being said, I also do NOT make a single dollar off it. Not one.


In order to do so, I would have to:

  • Host my own blog, which is expensive! I would then be able to initiate google analytics.
  • Affiliate links and Ads
  • Charge brands to work with me in exchange for content creation. I can’t do this because my traffic is not significant enough.
  • Sell some Art. That means REALLY sell Art. Not just false leads aka. interested customers but no transactions.

There’s various ways you can help me:

  • Share my content
  • Sign up through my Ebates / Swagbucks links on the right hand side of my blog
  • “Buy me a Coffee” – Monetary Donation
  • Buy some of my art

Believe me, I have been brainstorming! I do whatever I can to make a good go-of-things but I currently work VERY infrequently and I am always wanting to create more and more content.

Thanks to all my amazing viewers, friends, family, #actuallyautistic community and brands/venues that have been kind enough to collaborate with me.

Passing Judgment

Throughout my life, people have passed judgment on me based on the way I look, act or quite frankly who I am.

I think the way I present myself has a lot to do with my sensory sensitivities. For instance: I don’t “dress my age” and I prefer wearing comfortable clothing such as shirts that are a men’s size small, jeans, and slip on shoes. I rarely wear makeup and I usually just brush my hair and head out the door. It’s already so mentally trying to go out in to the world that the energy I would use to make myself presentable gets used up so fast. By that time, i’m already beyond drained and I start feeling physically ill.

 

Sometimes I dress very casually and sometimes I look fancy.


My intellectual capacity is clearly questioned because some people, whether it’s conscious or not, believe that the way someone looks has to do with the way they think.

I was treated very poorly at a restaurant and I can’t say for certain that it had anything to do with the way I looked, but I wouldn’t be surprised. It seemed like I was stereotyped as dumb and trashy because of my use of coupons and was spoken down to – which i’m still feeling anxious and upset about.

The English idiom “don’t judge a book by its cover” is a metaphorical phrase which means “you shouldn’t prejudge the worth or value of something by its outward appearance alone”. For example “That man may look very small and insignificant, but don’t judge a book by its cover – he’s a very powerful man in his circle”. —Wikipedia

We all deserve a little kindness and compassion, no matter what we look like.

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Photo by Stokpic on Pexels.com

 

Links of interest:

 

Years may go on…

..but words still hurt and the pain lingers.

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Photo by Shamia Casiano on Pexels.com

I believe in the power of words. Whether it’s for good or bad, words linger. The power you can have over someone else’s emotions and personal strength is more impactful then you probably realize. That being said, tomorrow is my birthday and today I feel a bit crestfallen.

15 years, 20 years or 25 years, does the timeline really matter if you still feel the same way that you did when that person said or did that hurtful thing to you? Does time invalidate the pain or the ability to make things right with someone who you may have said incredibly distressing things to? No. Never.

You have time to make things right; time to heal those who you have wounded.

I feel like a fool sometimes for reaching out to those people and try to give them a chance to make amends, clear the air and have a positive interaction with me — but some of those people would rather make it seem like I am the one at fault; like I deserved it.

Reliving these terrible instances is a horrible way to live. Oh, and not only live, but sleep, dream or even have nightmares about it. Why are some worthy of respect from these individuals, even friends of mine, and yet I’m not? I don’t know if it’s because I’m wired differently, because I’m neurodiverse or because my skin isn’t as thick as it could be. I wear my heart on my sleeve. I spent so many years crying and being ‘beat up’ emotionally by those around me, including a family member who should have set a good example. The term “emotional punching bag” comes to mind.

DoodleBeth illustrates it perfectly. It was truly kismet to see this images yesterday.

If someone gives you the chance to make things right, please don’t insinuate that the victim is the one to blame when given the chance to make things right:

“I am sorry you harboured this feeling for so long. i’m not sure if I can give you the response that you wanted – but I do hope you can mend that hole.”

 

In conclusion:

Please make amends with those you may have hurt.
Your words are more powerful than you realize.
Be kind.

Autistic Speaking Episode 4

I refuse to be silenced.

-Margaux

I am Colour.

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Yes, I will admit it: I am Weird.

I believe I have embraced this as my identity in a very subconscious way. I have no fear when it comes to expressing myself and I don’t think I ever did.

Anxiety is also a big part of who I am. It sometimes forces me to freeze and feel very weak-minded. It takes over me. I sweat profusely, I get heart palpitations, I just want to run and cower. It even can prompt me to sleep a whole lot.

Art is something that can help calm me right down, it is my soul doing the talking. It is an everlasting moment of freedom. I can look at my Art and think “I made that?”. It can be incredibly hard to believe.

I have hopes and dreams with it. Literal “close-my-eyes-and-fall-asleep” dreams. I see myself in the heart of a big city with my art in a gallery. I know it can be considered low brow and heck, I know there’s people who don’t like it and who could truly care less about me. I still have this dream.

“It’s too small. It should be bigger!”

“I can’t be your friend because I can’t stand your Art.”

“Your art is ugly.”

Tell me this. Tell me this over and over and over and over again. Please.

Why? Get your negative thoughts out, it’s good for you.

But for me?

I’ll keep creating.

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Love,

Margaux

The power of misunderstandings.

Today I was told that I come across as “a bit entitled”.

I feel like that’s the farthest from the truth. I am an incredibly direct person who tends to include factual information and I ask a lot of questions. If a certain channel doesn’t yield any answers, I try another channel. Yes, I am an incredibly persistent person but that should not be confused with entitled.

I seek informative answers, I seek consistency. I seek an answer, whether that’s acceptance or rejection, I feel as though I’m worthy of either versus just being ‘ghosted’. Being completely ignored.

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My story and my passion is one that is mixed with drive, acceptance, awareness and equal opportunities. I have a mission to showcase products, attractions, experiences and opinions with my wide array of different visitors–both Neurodiverse and NT.

 

I wish there was a general understanding that I am not doing this blog to get free stuff. I am creating content because I want to show the world a very unique point of view. This is a niche. This is my passion and I love to create media rich content—it allows me to be creative which is a huge part of my identity.  I have been told by a very prominent local blogger that I should be charging for all the work I do. I have not made a cent.

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Please don’t pass judgement. Education is key and incorrect labels do not help anyone.

For more information, please visit:

https://www.psychologytoday.com/blog/aspergers-diary/201503/being-misunderstood

#AutisticVoicesFirst

Autism Speaks. It's Time to Listen.

When I realized that Autism Speaks slogan was “It’s time to listen”, my heart sank.

I honestly felt like I broke in to a thousand little pieces that no one could pick up. It was the feeling of grief. The more I research, the more I realize how much Autistic voices matter.

The CEO of Autism Speaks is someone who has experience managing different health related foundations. Her name is Angela Geiger. As far as I can tell – She is NOT Autistic.

Autism Speaks Canada is headed up by Jill Farber and she has spent 15 years as a private consultant specializing in ABA. She is NOT Autistic.

It’s important for the verbal portion of the Autism community to speak up for not only us but for our nonverbal brothers and sisters. After all, we know best. This is who we are in every aspect of our being.

Wouldn’t it be nice for Autism Meetup groups and self-advocacy networks to have funding and get provided devices and tools to make life easier? Frustratingly enough, most companies need a “front” to do so. By that I mean a “charitable” organization with whom to “partner” with so it looks like they’re doing a DAMN amazing thing to benefit those who need it most. Why can’t they do it without the publicity or without a partnership? Money- simply put! Advertising is key. Looking good to those who are uneducated on the subject increases profit margins and a veil of “doing good”.

Let’s PUT #AutisticVoicesFirst