Why I am not okay with the puzzle piece for Autism: A response & counterthought

I posted this video to my youtube channel. I try hard to create a corresponding post so that it makes it a bit more sharable and I can add a bit more context.

Youtube decided to recommend this video to me:

I took it upon myself to make a response:

I felt it was incredibly necessary for me to explain what exactly is wrong with the video and why it’s so hateful. I also wanted to represent some of my #ActuallyAutistic friends and activists who are on the other side of “the blue divide” and explain that yes, there are other symbols out there that do represent us much better than the puzzle piece. Although my reach on youtube may be smaller, my voice is still loud and valid.

I have also covered this topic before on a few more blog posts.

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It’s a mood, for sure.

Trying to see through the thick cloud of anxiety and depression is no easy task. It’s a huge, huge burden to bare. The flashbacks have become more repetitive, they feel deeper. Each time I fail, I feel those traumatic events seeping back in and filling those gaps where hope once was. It is a situation full of despair.

I’m so lucky to have these cute, silly beings in my life though. They make it all worth it.

I should be happy or at the very least feeling fine. I think part of the disappointment is due to the fact that I really thought the article on The Mighty would perform better. I thought it would drive people to my website and to my shop, but the views and interactions have been fairly dismal.

The hits on my Etsy shop have totally decreased too. I heard there’s something going on with an algorithm to do with the people that don’t have free shipping or don’t offer it on all their listings. It’s making them less visible. I know for me that when i sell original pieces, shipping is included. It’s everything that’s made by a 3rd party that has shipping separately.

I also should be pleased with myself about having my speech coming up later this week and being approved to be a consultant about issues surrounding mental health and Autism–and yes, I am looking forward to creating change, but i’m also the poster child for those issues. So, I guess in a roundabout kind of way, i’m going to really be able to reflect on my experiences and create change. That’s the silver lining.

I wanted to share some images that my customers have shared with me, which is pictures of their purchases from my etsy shop. This helps keep me going, but sales in the last while have been so dismal. I’m also upset because the way advertising works on etsy is that I paid 4.80 American to get one person to click on one item that they didn’t even buy. So frustrating. I’ve heard better things about facebook ads but i’m just not even sure how to go about it. Seems when I talk about business, there’s people that genuinely want to help and then there’s people who poach on my lack of experience and try to manipulate me to pay them. I guess that’s another business strategy–but it’s one that I don’t want anything to do with.

If I can bring joy to others, even though i’m suffering, well.. I think that’s a way to turn something negative in to something positive.

I tried creating a new plaque that says “cats make life purrfect” but the cats I drew look terrible. The two wood signs I was happy about completing, haven’t really seen much traffic either. I thought they’d be a bigger hit.

My holiday cards are also still up for pre-ordering at a reduced rate. Hoping to have my hands on those the 3rd week of October, ready for shipping.

Greta Thunberg, a climate change activist and fellow Autistic has been taking quite a beating online. It really upsets me that people say such horrible things about her. I think politics are a main driving factor for people to be so hateful in this world. I tweeted about the honesty of Autistic people and how we’re fact based and it definitely goes for her too. Actually, this quote of mine says it all:

Lots of things happening!

I wanted to start this off with some really good news.

My Kickstarter has met AND exceeded it’s goal! I’m so pleased and so grateful!

I’ve been approved to work on a local, digital collaboration project and I will be speaking later this month about my artwork and being autistic. So many things are happening for me all at once and it’s absolutely insane. I can’t even begin to express how totally thankful I am.

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I’ve also made a lot of new friends on facebook and my etsy is seeing wonderful amounts of traffic. The feedback about my artwork is so positive. I am happy that I get to share my story of success and what Autistic people are capable of.

It’s really awesome that I will be able to have Christmas cards in 4 different designs to share with people. The fact people want them as much as they do is something I would have never imagined in my wildest dreams!

On another side of the coin, i’m dealing with some pretty severe stress and anguish because I have someone who has made it a point of posting completely untruthful things about me on Reddit. I’m not sure how to handle this. I’ve shared my side of the story and I would hope people would read it and come to their own conclusions. It’s really too bad because this person has insinuated that I don’t do research when it comes to getting my art on different items and also questioned my Autism diagnosis. They purposely misgendered me as well and took multiple different subjects I spoke about in a live stream to craft a gigantic LIE about me. This person is a fellow Autistic Artist too. I had to actually ban them from my Made by Autistics group for coming after me.

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I’m really doing my very best trying to mentally compartmentalize all of the things I have coming up and what I need to prioritize but it’s incredibly hard and dealing with such unnecessary drama takes a toll on my executive functioning.

Ah, C’est la vie.

Life would be so much easier…

..If I didn’t wear my heart on my sleeve.

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It’s so hard for me to read people, I know — i’ve written about this in the past, but it’s the truth.

I am vocal about being Autistic because my inability to connect with people is rooted in my neurodiversity. Now, i’m not saying it’s a bad thing (but it definitely can be).

I am still figuring out where my place is in the world and how I can integrate myself more seamlessly in to the environment around me and it’s not going well.

I don’t understand intent from others. I have been taken advantage of or put in situations that I believe will have a favourable outcome, but they don’t. It’s generally the other party who is interested and I go along with what is happening. I meet someone, spend time with them and then afterwards feel incredibly remorseful during my reflection of what just happened.

A lot of the time it can simply be the energy that I sense from others, i’ve been told before I am a “sensitive” and I don’t know the validity of that label, however what I do know is that I tend to repeat scenerios in my head. The more I seem to do this, the worse I feel. It’s the anxiety (once again) propelling me to a very dark place I didn’t want to go.

I have been getting back in to the dating pool and it has been incredibly draining for me. I don’t think i’m going to continue. I put my heart and soul in to everything I do and it tends to make me feel objectified. I am so eager to get to know people and learn their quirks, but I can’t say that it’s been easy trying to find people who understand me. They see me for one thing and that’s it. Also, identifying as non-binary puts a whole other wrench in to that situation because I am viewed as strictly female.

So, I deleted the dating apps and i’m done with that. I am not going to put myself through that hurt anymore. It’s time I focus on myself, my art, my writing, my advocacy work and OBVIOUSLY cats (because, hello, life is incomplete without them!)

Life always throws something my way, I feel like i’m always trying to decipher a code that I can’t crack.

Be kind; for I am fragile.

Sharing my struggles

Yesterday, I was absolutely taken aback by a comment I received on one of my twitter status updates.

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I had posted a mini rant about my frustrations with my art and my mental health struggles. It felt liberating to be able to “clear the air” and be transparent.

Nowhere in my rant did I ask a single question. Not. One.

I had a few positive, supportive comments from fellow Autistics and followers of my page, which I was grateful for.

However, there was one person who decided to go off on me and write an entire paragraph about how I need to stop trying to sell my art, that I need to work on my mental health and that I clearly didn’t have it under control. Also, that I shouldn’t be posting these questions and not expect a response. There was no question. I wasn’t asking for advice.

I was pretty upset, shaken and I felt like this person had the clear intent of kicking me while I was down.

I posted a couple tweets which seem to be going viral. I penned them right after this person decided to delete their comments.

stig·ma/ˈstiɡmə/

noun

1.a mark of disgrace associated with a particular circumstance, quality, or person.”the stigma of having gone to prison will always be with me”synonyms:shame, disgrace, dishonor;

If you’re looking to end the stigma of mental health, giving someone unwanted feedback and being insensitive is the absolute 100% WORST WAY TO GO ABOUT IT.

if you’re reading this and you’re going through something, don’t ever feel like you deserve condescending comments & unwarranted advice.

Passing Judgment

Throughout my life, people have passed judgment on me based on the way I look, act or quite frankly who I am.

I think the way I present myself has a lot to do with my sensory sensitivities. For instance: I don’t “dress my age” and I prefer wearing comfortable clothing such as shirts that are a men’s size small, jeans, and slip on shoes. I rarely wear makeup and I usually just brush my hair and head out the door. It’s already so mentally trying to go out in to the world that the energy I would use to make myself presentable gets used up so fast. By that time, i’m already beyond drained and I start feeling physically ill.

 

Sometimes I dress very casually and sometimes I look fancy.


My intellectual capacity is clearly questioned because some people, whether it’s conscious or not, believe that the way someone looks has to do with the way they think.

I was treated very poorly at a restaurant and I can’t say for certain that it had anything to do with the way I looked, but I wouldn’t be surprised. It seemed like I was stereotyped as dumb and trashy because of my use of coupons and was spoken down to – which i’m still feeling anxious and upset about.

The English idiom “don’t judge a book by its cover” is a metaphorical phrase which means “you shouldn’t prejudge the worth or value of something by its outward appearance alone”. For example “That man may look very small and insignificant, but don’t judge a book by its cover – he’s a very powerful man in his circle”. —Wikipedia

We all deserve a little kindness and compassion, no matter what we look like.

sunset hands love woman

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Links of interest:

 

For Us Without Us

Brand New Video!

My SSRI Story

SSRI stands for Selective serotonin reuptake inhibitors.

Simply put: Antidepressants.

joshua-coleman-623113-unsplash.jpgJOSHUA COLEMAN

The last week or two of September were exceptionally cruel to me and even still the withdrawal symptoms linger. I have been strongly against taking these pills ever since I was a child. My childhood Psychologist would constantly mention these as an option to help curb my mood disorders and I was always hesitant and frustrated. I would put up a fight till my eyes were read and tears were streaming down my face.

This was not something I wanted to do. I did not want to partake in taking pharmaceuticals to help me. I didn’t even like taking Tylenol for any generalized pain.

I felt like being alive was bad enough;

I might as well suffer.

Fast forward to now and I still feel like a shell of myself. I’m always worried about the actions of other people and how they create a lasting impression on me. If someone says something rude, I dwell on it. I ask myself repeatedly why they did that and I start to feel unwell about it. I negatively obsess.

My activism, coupled with the horrible emails I receive from companies, corporations and wealth management companies make my mood worsen. I try to focus on the bigger picture and the hopes of creating a positive impact through my own pain and the pain and misunderstanding associated with my peers in the #actuallyautistic community.

I just can’t deal with anything very well.

I have tried three types of pills: Escitalopram (Cipralex/Lexapro), Sertraline (Zoloft) & Venlafaxine (Effexor XR) with absolutely no positive experiences.

The Cipralex left me feeling very hollow, very distracted and very much like I was just dragging myself to do anything – although, out of the three I tried, it worked the best.

The Zoloft didn’t seem to do much at all.

The Effexor XR just made me feel really unwell and my mood was worsened so, I decided to just stop without tapering off. The withdrawal effects were worse than what I expected. Sweats, vomiting, car sickness, the worst nausea I have felt in what seems like forever and a “shaky brain” feeling. There was also a strong need for a whole lot of sleep.

I went to another appointment to my Psychiatrist and it didn’t go particularly well.  He is incredibly dismissive and has me in and out of his office in 5 minutes or less.

He asks me questions completely unrelated to my suffering:

“How are your parents?”, he asked.

“Well, I don’t REALLY talk to my Dad… so.. yeah. My Mom is fine though.. but why didn’t you just increase my dose of Cipralex?”

“Oh, If it wasn’t working at that dose then it’s unlikely it will work at a higher dose.” He then followed that statement up with another unrelated comment.

The sense of defeat and the dark cloud over me seemed to take on more rain at that instant.  It’s apparent, This person, this professional, this DOCTOR who is supposed to help me just wants me out of his office as fast as possible. I like to call them “Fast Food Doctors” because you’re in and you are out very quickly so the Doctor can see more patients and make more money in a shorter amount of time.

My depression and anxiety make my already intense light sensitivity and poor balance much worse. I often feel like I’m going to faint or fall over and my heart starts beating a mile a minute.

What now?

Well, I can’t even work. How am I supposed to get anything done when I just am running out of viable options? I can’t afford to get any kind of mental health assistance where I can talk to a psychologist. That’s not in the cards for me.

 

 

Disclaimer: Please don’t take my article for professional advice. If these medications worked for you then I wholeheartedly commend you on your successful wellness journey. These are my own personal experiences and do not necessarily reflect my readers mental health/wellness plan.

Evolving, slowly.

I’ve been working on new patterns while we wait for our fabric tags for retrophiliac and co.

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I am very anxious and I have been really internalizing my stress. I’m trying not to, but my appetite is gone and my sleep patterns are all screwed up. I’m napping a lot and I haven’t gone outside as much as I should.

I’m going through a dramatic change. I have a job interview next week and I am crossing my fingers that I get it. It’s something i’ve done before and loved immensely. It’s also walking distance from where I am staying and right down the street from where my sister works.

Making friends or having a social life and getting involved in things that this city has to offer is something I would like to do a lot more of. I feel incredibly lucky to be back here, surrounded by family. I never felt like I spent enough time with them.

Please bear with me. I am growing as a person!

-Margaux

Consumer VS. Corporation

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Blogging can be joyful but it can also be incredibly disheartening, frustrating and full of defeat (yes, i’ve mentioned this plenty of times before).

I owe a lot of gratitude to the companies that have been kind enough to work with me, not because of a ROI but because they genuinely care about my opinion and the content I create.

If you are a large corporation worth billions of dollars and you decide to run an “Autism at Work” program, employing autistic individuals and running seminars/talks with lots of press material and attendance, it’s in your very best interest to make sure that everyone is on the same page.

What do I mean by this?

Your PR company should know better than to use the terminology “with autism”, they should also realize that if they are employing autistic individuals then that would be a perfect segue to attracting autistic customers.

I got so wound up and so incredibly anxious after dealing with all this in the morning that I have felt unwell the entire day. I tend to internalize my feelings.

Sometimes I think of our home, our planet as seen from space. It makes me realize how insignificant I truly am and helps puts things in to perspective.

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-Margaux