Yesterday, I was absolutely taken aback by a comment I received on one of my twitter status updates.
I had posted a mini rant about my frustrations with my art and my mental health struggles. It felt liberating to be able to “clear the air” and be transparent.
Nowhere in my rant did I ask a single question. Not. One.
I had a few positive, supportive comments from fellow Autistics and followers of my page, which I was grateful for.
However, there was one person who decided to go off on me and write an entire paragraph about how I need to stop trying to sell my art, that I need to work on my mental health and that I clearly didn’t have it under control. Also, that I shouldn’t be posting these questions and not expect a response. There was no question. I wasn’t asking for advice.
I was pretty upset, shaken and I felt like this person had the clear intent of kicking me while I was down.
I posted a couple tweets which seem to be going viral. I penned them right after this person decided to delete their comments.
1.a mark of disgrace associated with a particular circumstance, quality, or person.”the stigma of having gone to prison will always be with me”synonyms:shame, disgrace, dishonor;
If you’re looking to end the stigma of mental health, giving someone unwanted feedback and being insensitive is the absolute 100% WORST WAY TO GO ABOUT IT.
if you’re reading this and you’re going through something, don’t ever feel like you deserve condescending comments & unwarranted advice.
After being beaten down this week (see my last two posts) and feeling absolutely hellish, I wanted to do something good, something creative and something NICE!
I have found there to be a severe lack of opportunity for my Art locally and I can only imagine that other people have felt the same so I created the Made By Autistics Marketplace on facebook to give people the chance to sell their art, wares and other things they’ve created to anybody willing to join the group. I coined the phrase “By Autistic People For Everyone” to really outline what i’m going for.
Before any opportunity is offered to me, I always do my research. I search up the positives and negatives so I can make an informed decision. That seems to be common sense; at least that’s what I thought.
Occasionally, i’ll do a twitter search for “Autism Speaks” to see what kind of propaganda is being perpetuated. I’ll usually see parents, this running app (CharityMiles) that donates to them and merchandise with puzzle pieces for sale.
So, back to yesterday, I noticed there was a gamer by the name of Ash or Clash With Ash (CWA) who was incredibly excited to share the news of his ambassadorship with Autism Speaks. His video was complete with puzzle pieces in the background. What a lovely touch.
We, the Actually Autistic community have been on it. We’ve let him know that this isn’t helping us – that it’s actually hurting us. Ash’s followers are commending him and don’t seem to be questioning him. I’m assuming they believed he did his due diligence and researched Autism Speaks before he went full out and posted all his puzzle-piece laden propaganda for them to eat up and praise him for. He’s been incredibly quick to thank his supporters and put us in the backseat. Part of me believes he thought this would be good publicity and paint him as some kind of saint because his late Brother was Autistic. Here’s the initial tweet that started this all.
If you take the time to scroll through his twitter, you’ll see the calm before the storm. I took it upon myself to let his followers know that his actions are the opposite of commendable-by informing them that Autism Speaks is not a good organization. I don’t recall any of them responding to me.
I’m not sure how this benefits him. Perhaps it gives him a greater sense of purpose and believes that because he has a platform and an audience, that he could bring some kind of awareness to a cause he says is so important to him. We don’t need that. We can advocate for ourselves without hiding behind the guise of a hate group. There’s also better organizations to donate money to, like ASAN.
If you wish to add your opinion and let him know that we don’t need him to speak on our behalf, his social media platforms are:
Today I was told that I come across as “a bit entitled”.
I feel like that’s the farthest from the truth. I am an incredibly direct person who tends to include factual information and I ask a lot of questions. If a certain channel doesn’t yield any answers, I try another channel. Yes, I am an incredibly persistent person but that should not be confused with entitled.
I seek informative answers, I seek consistency. I seek an answer, whether that’s acceptance or rejection, I feel as though I’m worthy of either versus just being ‘ghosted’. Being completely ignored.
My story and my passion is one that is mixed with drive, acceptance, awareness and equal opportunities. I have a mission to showcase products, attractions, experiences and opinions with my wide array of different visitors–both Neurodiverse and NT.
I wish there was a general understanding that I am not doing this blog to get free stuff. I am creating content because I want to show the world a very unique point of view. This is a niche. This is my passion and I love to create media rich content—it allows me to be creative which is a huge part of my identity. I have been told by a very prominent local blogger that I should be charging for all the work I do. I have not made a cent.
Please don’t pass judgement. Education is key and incorrect labels do not help anyone.