Former friends, loyalty and Being Autistic

I seem to utilize my blog at times where I feel really emotional, or post meltdown. Sometimes I feel calm and serene while updating but most of the time I am dealing with inner turmoil.

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Periodically throughout the years, someone who made negative comments about my mother and essentially ghosted me over a decade ago, has constantly reached out to my family members to engage in friendly banter — all while choosing to ignore me with every attempt to find out what I did wrong, apologize and clear the air. This person would press ‘block’ nearly immediately.

I wasn’t trying to recreate a friendship we just had (which is what they thought I was trying to do), I was merely trying to reduce or eliminate the negative feelings they had towards me.

I thought this was the right thing to do.

Seeing the comment they made yesterday (on my family members post) was no different. I sent an apology, said their kindness ‘didn’t go unnoticed’ and attempted to reach out. I had done this periodically throughout the years in the hopes that they would grow as a person, forgive and ‘be okay’ with who I am as a person. I’m not sure why I would be lead to believe any differently when the example of their behaviour that I was presented with was kind, conversational and engaging.

Well, I was wrong. I was very wrong. Once again, I misread the social cues. I reached out and got blocked.

I went to my other (art) account and then asked them to “please do not interact with my family anymore.” I had told my family member how this person had been treating me throughout the years (with visual proof, this time) in the hopes that they would stand by me, support me and no longer associate with someone who had been treating me so disrespectfully.

The response I got was probably one of the cruelest, most judgemental messages I have ever received in my life. There were comments about me being negative, toxic, throwing a temper tantrum, how this person is in their 30’s now and they’ve grown and that’s due in part to the fact that I am no longer in their life, that my attempts to reach out (and in my words, reconcile) were harassment. This was two exceptionally long messages. I then explained that my family member had read the words they told me, and finally they told me to ‘go F myself’ and that I was ‘toxic AF’. This person also chose to misgender me. If they would have taken the time to even learn about my Autism diagnosis, they would have seen how these comments were rooted in ablism. I did not have my diagnosis until 5 years ago. I didn’t even self diagnose at the time we were friends.

Now, let’s not forget that people change a whole lot in 12-14 years. I certainly am not the same person I was in my late teens/early twenties. My main focus is doing what I can for the Autistic community and supporting cat welfare organizations when I am able to. My mindset is “What can I do for others?” —especially in times of distress.

The part that hurt the most is that this lead to a huge argument with my family member who was incredibly defensive and refused to cut this person out. Fortunately, this former friend of mine blocked my family — but in the end, it wasn’t really about the former friend. It was about remaining loyal to family. It was about being supportive of your family member when someone else has chosen to spew words that don’t; harbour any truth; words that were made to hurt.

I cried a significant amount last night. I had a meltdown. I felt like I couldn’t see, like I couldn’t breathe. None of the words I was saying (and the way I was explaining the situation) seemed to have resonated with those around me. I felt wholly exasperated.

I was essentially crying out for much needed emotional support and I was not getting it from those around me. I was not getting the “I care about you. This person treated you poorly. I love you, I have your back. I wouldn’t ever associate with someone who treats you like this. This is showing who they are as a person and it’s not reflective of who you are.” None of that. I got this kind of support from my friends, albeit – online. That doesn’t negate how thankful and gracious I was to each person who was willing to listen.

The moral of the story is: remain loyal to your friends and family. Stand up for them. Don’t allow them to be bullied by others. Don’t sit idly by and be complacent. Not involving yourself is essentially saying “hey, this behaviour is okay.” it’s not saying “i don’t want to be involved in drama.”

Engaging in friendly banter with someone who bullies your relative is a way to continue to re victimize and trigger them — yes, it is even worse if they are Neurodiverse. We need more allies. We need less people to be complacent with ableist behaviour and more people to stand up and say “this isn’t okay how you are treating them (my family). I don’t feel comfortable engaging with you unless you make amends and express kindness towards them.” either that, or swiftly blocking them without allowing pride to get in the way.

That’s all I wanted.

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Lots of things happening!

I wanted to start this off with some really good news.

My Kickstarter has met AND exceeded it’s goal! I’m so pleased and so grateful!

I’ve been approved to work on a local, digital collaboration project and I will be speaking later this month about my artwork and being autistic. So many things are happening for me all at once and it’s absolutely insane. I can’t even begin to express how totally thankful I am.

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I’ve also made a lot of new friends on facebook and my etsy is seeing wonderful amounts of traffic. The feedback about my artwork is so positive. I am happy that I get to share my story of success and what Autistic people are capable of.

It’s really awesome that I will be able to have Christmas cards in 4 different designs to share with people. The fact people want them as much as they do is something I would have never imagined in my wildest dreams!

On another side of the coin, i’m dealing with some pretty severe stress and anguish because I have someone who has made it a point of posting completely untruthful things about me on Reddit. I’m not sure how to handle this. I’ve shared my side of the story and I would hope people would read it and come to their own conclusions. It’s really too bad because this person has insinuated that I don’t do research when it comes to getting my art on different items and also questioned my Autism diagnosis. They purposely misgendered me as well and took multiple different subjects I spoke about in a live stream to craft a gigantic LIE about me. This person is a fellow Autistic Artist too. I had to actually ban them from my Made by Autistics group for coming after me.

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I’m really doing my very best trying to mentally compartmentalize all of the things I have coming up and what I need to prioritize but it’s incredibly hard and dealing with such unnecessary drama takes a toll on my executive functioning.

Ah, C’est la vie.

Too much pressure.

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Please don’t mistake me or try to make me

The shadow of anybody else

I ain’t the him or her you think I am

I’m just trying hard to be myself

Oh, society’s goal is to be part of the whole

That may sound good to you, not to me

The Turtles, Let Me Be

All I wanted was the ability to share my art with the world…. and it has turned in to half disaster, half success.

I don’t know how i’m supposed to handle it.

For a bit of a backstory, I posted some of my cat themed art in to some various cat facebook groups. Some were more receptive than others, some banned me for accidentally violating their rules (even though I had made a google docs with the different groups and varying rules), and my facebook exploded. Messages, friends requests, a lot were welcomed with open arms but it was non stop and very anxiety inducing. I already have very, very bad anxiety but this actually made it a lot worse.

I ended up making my own group, Nice Cats for Nice People. We actually welcome those who are Neurodiverse, who want to share their cat-related art and etsy store and try to adhere to less stringent rules.


I then had people writing me, telling me how they thought I was violating (cat facebook group) rules and giving me feedback I didn’t ask for, which made me even more agitated. I can’t tell you how many new people i’ve had to cut ties with. It just hasn’t been healthy for me.

Yesterday, I was in the car, traveling to go to a concert and I cried. I flailed my hands for a short few seconds. I felt like I couldn’t breathe. I didn’t want to do anything but go back home, miss the concert and weep in bed. This was after a few people decided to tell me that I was oversharing the negative messages I was receiving on my facebook page and some of the private messages sent to me seemed to have a good intention but had a lot of unwanted, “real” or “brutally honest” advice that I didn’t ask for. I was already on the brink of an emotional collapse and that sent me over the edge.

There have been incredibly positive people and really negative people.

There’s also those who don’t understand:

There’s even people who believe it’s okay to tell me that I clearly have issues after i’ve made it incredibly clear that I suffer from mental illness, which is intertwined with being Autistic.

Being Autistic is not an excuse, It’s a NEUROTYPE! It’s part of who I am and why I behave the way I do. I honestly can’t even believe I have to justify myself to anybody but I have to write this because these things keep happening to me over and over again. I also had to reiterate that my artwork and my Autism are very much hand-in-hand and that I utilize my art to talk about Autism and vice versa. I have HUNDREDS of pieces i’ve art that i’ve painted. I’m not new to this at all. I have been making art my entire life.

There was a time where I really only worked intuitively and for myself, as a way to relax and unwind. When people can’t understand why a pet portrait costs 150.00 USD, I don’t really know what to say without sounding really upset and hurt. It’s a lot to take the personality of someone’s cat and turn that in to my own style. If i’m working intuitively, I don’t think. I don’t need to plan the way something looks, copy features and make it look like someone’s best friend. Getting the features right and the art completely perfect puts so much pressure on me to appease my customer. I’m almost at the point where I have to set my price at something that aligns with my thoughts of “how much would it take for me to drag my ass out of bed and paint something for someone else?” Honestly, I don’t even know what that price would be.

I even made an FAQ because I kept getting asked questions over and over again.

My brain is not only wired differently due to the fact that I am Autistic, but my chronic depression, anxiety and poor coping methods are linked to the fact that I spent 15 years or so being verbally and emotionally abused by my father…EVERY SINGLE DAY. Add that to the childhood bullying and ostracization from my peers at school and you have a brain that suffered from a lot of trauma during it’s most vital developmental years. I also hear that if you’re removed from your mother immediately after birth, which I was, that can also lead to developmental issues. I also am learning disabled. I never graduated, I got my GED instead.

I really want those reading this to understand a few things so i’m linking them below.

I hope this provided insight in to just some of the things I am struggling with. Please be kind.

My SSRI Story

SSRI stands for Selective serotonin reuptake inhibitors.

Simply put: Antidepressants.

joshua-coleman-623113-unsplash.jpgJOSHUA COLEMAN

The last week or two of September were exceptionally cruel to me and even still the withdrawal symptoms linger. I have been strongly against taking these pills ever since I was a child. My childhood Psychologist would constantly mention these as an option to help curb my mood disorders and I was always hesitant and frustrated. I would put up a fight till my eyes were read and tears were streaming down my face.

This was not something I wanted to do. I did not want to partake in taking pharmaceuticals to help me. I didn’t even like taking Tylenol for any generalized pain.

I felt like being alive was bad enough;

I might as well suffer.

Fast forward to now and I still feel like a shell of myself. I’m always worried about the actions of other people and how they create a lasting impression on me. If someone says something rude, I dwell on it. I ask myself repeatedly why they did that and I start to feel unwell about it. I negatively obsess.

My activism, coupled with the horrible emails I receive from companies, corporations and wealth management companies make my mood worsen. I try to focus on the bigger picture and the hopes of creating a positive impact through my own pain and the pain and misunderstanding associated with my peers in the #actuallyautistic community.

I just can’t deal with anything very well.

I have tried three types of pills: Escitalopram (Cipralex/Lexapro), Sertraline (Zoloft) & Venlafaxine (Effexor XR) with absolutely no positive experiences.

The Cipralex left me feeling very hollow, very distracted and very much like I was just dragging myself to do anything – although, out of the three I tried, it worked the best.

The Zoloft didn’t seem to do much at all.

The Effexor XR just made me feel really unwell and my mood was worsened so, I decided to just stop without tapering off. The withdrawal effects were worse than what I expected. Sweats, vomiting, car sickness, the worst nausea I have felt in what seems like forever and a “shaky brain” feeling. There was also a strong need for a whole lot of sleep.

I went to another appointment to my Psychiatrist and it didn’t go particularly well.  He is incredibly dismissive and has me in and out of his office in 5 minutes or less.

He asks me questions completely unrelated to my suffering:

“How are your parents?”, he asked.

“Well, I don’t REALLY talk to my Dad… so.. yeah. My Mom is fine though.. but why didn’t you just increase my dose of Cipralex?”

“Oh, If it wasn’t working at that dose then it’s unlikely it will work at a higher dose.” He then followed that statement up with another unrelated comment.

The sense of defeat and the dark cloud over me seemed to take on more rain at that instant.  It’s apparent, This person, this professional, this DOCTOR who is supposed to help me just wants me out of his office as fast as possible. I like to call them “Fast Food Doctors” because you’re in and you are out very quickly so the Doctor can see more patients and make more money in a shorter amount of time.

My depression and anxiety make my already intense light sensitivity and poor balance much worse. I often feel like I’m going to faint or fall over and my heart starts beating a mile a minute.

What now?

Well, I can’t even work. How am I supposed to get anything done when I just am running out of viable options? I can’t afford to get any kind of mental health assistance where I can talk to a psychologist. That’s not in the cards for me.

 

 

Disclaimer: Please don’t take my article for professional advice. If these medications worked for you then I wholeheartedly commend you on your successful wellness journey. These are my own personal experiences and do not necessarily reflect my readers mental health/wellness plan.

Evolving, slowly.

I’ve been working on new patterns while we wait for our fabric tags for retrophiliac and co.

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I am very anxious and I have been really internalizing my stress. I’m trying not to, but my appetite is gone and my sleep patterns are all screwed up. I’m napping a lot and I haven’t gone outside as much as I should.

I’m going through a dramatic change. I have a job interview next week and I am crossing my fingers that I get it. It’s something i’ve done before and loved immensely. It’s also walking distance from where I am staying and right down the street from where my sister works.

Making friends or having a social life and getting involved in things that this city has to offer is something I would like to do a lot more of. I feel incredibly lucky to be back here, surrounded by family. I never felt like I spent enough time with them.

Please bear with me. I am growing as a person!

-Margaux

” Autistic burnout is real guys and i’m feeling it real bad.”

I tweeted this out yesterday and I am still feeling the same way today.

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Explaining it to people is devastatingly hard. I commend the attempt at understanding but unless you’ve experienced it yourself, you never know. For me, the exhaustion kicks in, both mentally and physically. The light sensitivity happens and being able to see gets increasingly difficult. Trying to be social is virtually impossible and continues to drain energy that is barely left. I get goosebumps, I physically look ‘drained’. My attempt at tasks that require my fine motor skills becomes a course in ‘how many times can I fail?’

Autistic burnout isn’t a made up thing- I just wish it was easier to explain to people. It’s not an excuse and it’s not like I consciously (or unconsciously) decided to be perceived as lazy or unreliable. There’s such thing as ‘too much’ and I feel as though that’s where i’m at.

This happens to me, and i’ve documented it before:

 

My Story: Part 1

I was born near the end of the 80s. A time of plenty.

My entrance in to the world was a rocky one. I was born with a couple of birth defects and had surgery shortly after I was born. I had another surgery months (or weeks?) later.

I grew up in an upper class neighbourhood (in Vancouver, BC Canada) in a big pink house that wasn’t much older than me with my family being the very first owners. The houses surrounding us were mostly heritage homes, few of which are still standing today.

I attended a religion-based private/community school from Nursery 3 up until the 6th grade. It was horrible and I spent nearly every day crying. I’d start my day with a sense of dread, spend the middle of the day battling with my own self esteem as those around me diminished it any chance they got. I’d come home and have one of my parents ask me how school was or what I did. It was the last thing I wanted to answer and I would get scolded for being evasive.

I then transferred to a private school and the very same problems followed me there. 6th grade and part of the 7th grade. I wanted to vanish, forever. The kids were just as cruel but they didn’t spend 9 years of their lives growing up with me- not that it made any kind of difference.

I transferred schools again, this time it was a multi-modal program with another very high price tag for me to attend (yes, the last two schools definitely cost notable chunks of change). I had made a couple of friends, but I still felt like I wasn’t supposed to be there. I wasn’t sure where I would ever fit in. This time, it was a couple of teachers that I clashed with. Mr. H – he got mad at me through my ’emo’ years for wearing a spiked bracelet. He told me it was banned and that I was NEVER to wear it again. I kept asking why? What was wrong with it? I didn’t get a solid answer. I was very upset. I went to the office and the receptionists were talking about me right behind my back. I called my Mom and within NO TIME at all she came to the school and confronted the teacher. She asked him, point-blank, if he thought it was some kind of “S&M thing” and he wouldn’t say anything! She then confronted the receptionists and they admitted they were talking about me.

I love my Mom so much, she’s always been my #1 and ALWAYS been there for me. She’s my best friend.

The second teacher, Mr. F was the art teacher. He told me once that all my art looked the same and constantly excluded me from events that were meant for everyone. It was a struggle to KNOW that i was purposely left out.

This is Part 1 of my story. If you’re interested in knowing more, please let me know.

Love,

Margaux

Hollow Twin

You never truly know the pain of losing someone who has been inspirational in your life until you no longer have the privilege of having them around. I believe that even after they have passed on, they are still there.

I lost my Step-Dad earlier this year, 2017 and it was difficult to see someone who was strong, bold, intellectual and had such a unique presence diminish so fast.

My Sister, Becky and her band mate Emmalee are the Vancouver duo known as Hollow Twin. The emotion gives me goosebumps. Their music is truly in a genre of its own.

The song “The Valley” is about the Chilliwack River Valley, the place where my Mum and Step-Dad spent many of their days together.

Learn more about Hollow Twin: