” Autistic burnout is real guys and i’m feeling it real bad.”

I tweeted this out yesterday and I am still feeling the same way today.

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Explaining it to people is devastatingly hard. I commend the attempt at understanding but unless you’ve experienced it yourself, you never know. For me, the exhaustion kicks in, both mentally and physically. The light sensitivity happens and being able to see gets increasingly difficult. Trying to be social is virtually impossible and continues to drain energy that is barely left. I get goosebumps, I physically look ‘drained’. My attempt at tasks that require my fine motor skills becomes a course in ‘how many times can I fail?’

Autistic burnout isn’t a made up thing- I just wish it was easier to explain to people. It’s not an excuse and it’s not like I consciously (or unconsciously) decided to be perceived as lazy or unreliable. There’s such thing as ‘too much’ and I feel as though that’s where i’m at.

This happens to me, and i’ve documented it before:

 

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My Story: Part 1

I was born near the end of the 80s. A time of plenty.

My entrance in to the world was a rocky one. I was born with a couple of birth defects and had surgery shortly after I was born. I had another surgery months (or weeks?) later.

I grew up in an upper class neighbourhood (in Vancouver, BC Canada) in a big pink house that wasn’t much older than me with my family being the very first owners. The houses surrounding us were mostly heritage homes, few of which are still standing today.

I attended a religion-based private/community school from Nursery 3 up until the 6th grade. It was horrible and I spent nearly every day crying. I’d start my day with a sense of dread, spend the middle of the day battling with my own self esteem as those around me diminished it any chance they got. I’d come home and have one of my parents ask me how school was or what I did. It was the last thing I wanted to answer and I would get scolded for being evasive.

I then transferred to a private school and the very same problems followed me there. 6th grade and part of the 7th grade. I wanted to vanish, forever. The kids were just as cruel but they didn’t spend 9 years of their lives growing up with me- not that it made any kind of difference.

I transferred schools again, this time it was a multi-modal program with another very high price tag for me to attend (yes, the last two schools definitely cost notable chunks of change). I had made a couple of friends, but I still felt like I wasn’t supposed to be there. I wasn’t sure where I would ever fit in. This time, it was a couple of teachers that I clashed with. Mr. H – he got mad at me through my ’emo’ years for wearing a spiked bracelet. He told me it was banned and that I was NEVER to wear it again. I kept asking why? What was wrong with it? I didn’t get a solid answer. I was very upset. I went to the office and the receptionists were talking about me right behind my back. I called my Mom and within NO TIME at all she came to the school and confronted the teacher. She asked him, point-blank, if he thought it was some kind of “S&M thing” and he wouldn’t say anything! She then confronted the receptionists and they admitted they were talking about me.

I love my Mom so much, she’s always been my #1 and ALWAYS been there for me. She’s my best friend.

The second teacher, Mr. F was the art teacher. He told me once that all my art looked the same and constantly excluded me from events that were meant for everyone. It was a struggle to KNOW that i was purposely left out.

This is Part 1 of my story. If you’re interested in knowing more, please let me know.

Love,

Margaux

Hollow Twin

You never truly know the pain of losing someone who has been inspirational in your life until you no longer have the privilege of having them around. I believe that even after they have passed on, they are still there.

I lost my Step-Dad earlier this year, 2017 and it was difficult to see someone who was strong, bold, intellectual and had such a unique presence diminish so fast.

My Sister, Becky and her band mate Emmalee are the Vancouver duo known as Hollow Twin. The emotion gives me goosebumps. Their music is truly in a genre of its own.

The song “The Valley” is about the Chilliwack River Valley, the place where my Mum and Step-Dad spent many of their days together.

Learn more about Hollow Twin: