Autism $peaks Walk 2018.

This is a FUNNY (not) story. My Mother was doing some banking recently and overheard a Woman talking about an Autism walk coming up. My Mom asked if it was Autism Speaks and the woman didn’t know. Apparently it WAS autism speaks.

I took it upon myself to contact some notable sponsors who are ALL listed on their website.

This is the message I sent:

Hello Autism Speaks Canada Donor,

My name is Margaux Wosk and I am an outspoken advocate for Autistic individuals like myself. I wanted to take the time to tell you a little bit about the negative impact you are having on our community.

Autism Speaks is highly disliked and rather frowned upon by the #actuallyautistic community. We use the hashtag #boycottautismspeaks.

Autism Speaks wants to find a cure for us, they believe we should cease to exist and with their genetic testing and “research” –well, it’s all in the hopes that we should vanish off the planet. Eugenics, plain as day.

Only a very small fraction of the funds they raise goes to help autistic individuals, i believe 5 percent. The majority of it goes to research. We do not need a cure, we do not need awareness. We need acceptance and inclusion. Those are the most important things for us. Clearly, I would know since I believe individuals like us deserve respect.

We do not want a cure; we do not support ABA.

If you’re interested in better places to donate your funds, please consider the autistic self advocacy network or even our local Autistic Meetup Group. They are always in need of help.

To learn more about me, please check out http://www.navigatingjourney.com

I was recently featured in Black Press Medias’ online and press publications in regards to my art and advocacy and I spoke out against autism speaks. https://www.langleytimes.com/community/cloverdale-artist-finds-activism-for-autism-through-painting/

I would hope you would take this chance to respond to me and reconsider your support and financial contributions to autism speaks in the future.

Here’s a response I received from the top donor, milau who works for the Royal Bank of Canada:

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I do not know how you got my email but please do not email me.

Hm, I wonder how I did that.

 

 

Invalidated by a neurotypical person, silenced and falsely accused of spreading misinformation… This is terrible and these are the people that are raising money for us to fail to exist. I’m not surprised by the fact I was just spoken down to and told to not email this person. Awful.

Silenced again, this time by a local childcare provider:

 

 

Silenced ONCE AGAIN by a donor:

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if they don’t want their names public then maybe they should consider that their names are publicly posted on the autism speaks website?

 

OUR VOICES SHOULD MATTER.

Please signal boost this if you can.

Autism Speaks is focused on “autism research and awareness.”

We need acceptance, not awareness.

 

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I am Colour.

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Yes, I will admit it: I am Weird.

I believe I have embraced this as my identity in a very subconscious way. I have no fear when it comes to expressing myself and I don’t think I ever did.

Anxiety is also a big part of who I am. It sometimes forces me to freeze and feel very weak-minded. It takes over me. I sweat profusely, I get heart palpitations, I just want to run and cower. It even can prompt me to sleep a whole lot.

Art is something that can help calm me right down, it is my soul doing the talking. It is an everlasting moment of freedom. I can look at my Art and think “I made that?”. It can be incredibly hard to believe.

I have hopes and dreams with it. Literal “close-my-eyes-and-fall-asleep” dreams. I see myself in the heart of a big city with my art in a gallery. I know it can be considered low brow and heck, I know there’s people who don’t like it and who could truly care less about me. I still have this dream.

“It’s too small. It should be bigger!”

“I can’t be your friend because I can’t stand your Art.”

“Your art is ugly.”

Tell me this. Tell me this over and over and over and over again. Please.

Why? Get your negative thoughts out, it’s good for you.

But for me?

I’ll keep creating.

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Love,

Margaux