I created a new video on a couple things that I felt needed to be addressed:
My facebook page, facebook.com/madebyautistics was hacked. My one other admin and two mods have been removed. Facebook is being useless so I had to rebrand entirely and create a new page over at facebook.com/madebyautisticsgroup.
In addition to the four plaques that have been happened, there’s also all my holiday cards too. These are just a few examples:
Thanks to my Kickstarter backers who made these cards a reality, I was able to pack up all these cards and they will be getting distributed between 3 cat welfare organizations. They will then be able to sell and/or use the cards and keep the profits. I also am thankful that it will be an opportunity for more cat lovers to see my work.
I’m laying in bed right now, trying to desperately turn off my active mind. It’s nearly impossible to do.
As April 1st comes to a close, i’m already struggling to come to terms with this month and the ignorance i’ve already encountered. Twitter is the place to go when you desire controversy and i’m no stranger to that.
I reside in British Columbia and we are synonymous with the NHL team, The Vancouver Canucks. Many people find them to be a source of pride and optimism, even to go so far as to say they represent Vancouver. I believed that for a long time until I became aware of the Canucks Autism Network.
It’s a great thing to want to support Autistic people but it’s another thing to utilize the puzzle piece and incorporate material sourced from Autism Speaks. They also use strange language like “families with autism” in their marketing materials. I feel like the #1 resource for those who organize these events and create the foundation for these networks and charities should be an Autistic person or even a group of Autistic people. To me, that simply is common sense.
The way these events are structured, there is a strong emphasis on family and children. A lot of the time Autistic adults are left out and not even considered. It’s as if they believe Autistic adults don’t exist. Hello! We’re here. We exist. We have opinions, thoughts, feelings that we would love to share with you. We’re human too!
I also saw that they are working with Microsoft’s Vancouver Office. For a while, I wanted to reach out and collaborate with Microsoft and I couldn’t even find a viable way to contact the right department. I was given a telephone number, I tried to exhaust internal contacts and I couldn’t get to the right person. I wonder if it’s purposely inaccessible? Microsoft has a program to hire Autistic people and yet the company is virtually unreachable.
When I realized that Autism Speaks slogan was “It’s time to listen”, my heart sank.
I honestly felt like I broke in to a thousand little pieces that no one could pick up. It was the feeling of grief. The more I research, the more I realize how much Autistic voices matter.
The CEO of Autism Speaks is someone who has experience managing different health related foundations. Her name is Angela Geiger. As far as I can tell – She is NOT Autistic.
Autism Speaks Canada is headed up by Jill Farber and she has spent 15 years as a private consultant specializing in ABA. She is NOT Autistic.
It’s important for the verbal portion of the Autism community to speak up for not only us but for our nonverbal brothers and sisters. After all, we know best. This is who we are in every aspect of our being.
Wouldn’t it be nice for Autism Meetup groups and self-advocacy networks to have funding and get provided devices and tools to make life easier? Frustratingly enough, most companies need a “front” to do so. By that I mean a “charitable” organization with whom to “partner” with so it looks like they’re doing a DAMN amazing thing to benefit those who need it most. Why can’t they do it without the publicity or without a partnership? Money- simply put! Advertising is key. Looking good to those who are uneducated on the subject increases profit margins and a veil of “doing good”.