My speech on September 28th went particularly well and I wanted to share it with all of you:
My kickstarter ended and right now it’s in the stage of collecting payment. Once I get the cards and fulfill the orders, I will be donating some to various animal welfare organizations to help raise money for them. I will also be listing some on etsy as well! I’m so pleased that the kickstarter was such a success.
I didn’t have the opportunity to protest Autism Speaks Canada, but I am hoping I can be there next year. I always talk about how they continue to silence Autistic voices, so it wasn’t a surprise when I went on twitter today to see that I was blocked.
I was talking about the Inclusion Art Show and that’s happening this Thursday. If you’re local to Vancouver, i’d love to see you there.
I have plenty more I want to write about but it’s late (or early?) and I can’t formulate anything else at this time.
Before any opportunity is offered to me, I always do my research. I search up the positives and negatives so I can make an informed decision. That seems to be common sense; at least that’s what I thought.
Occasionally, i’ll do a twitter search for “Autism Speaks” to see what kind of propaganda is being perpetuated. I’ll usually see parents, this running app (CharityMiles) that donates to them and merchandise with puzzle pieces for sale.
So, back to yesterday, I noticed there was a gamer by the name of Ash or Clash With Ash (CWA) who was incredibly excited to share the news of his ambassadorship with Autism Speaks. His video was complete with puzzle pieces in the background. What a lovely touch.
We, the Actually Autistic community have been on it. We’ve let him know that this isn’t helping us – that it’s actually hurting us. Ash’s followers are commending him and don’t seem to be questioning him. I’m assuming they believed he did his due diligence and researched Autism Speaks before he went full out and posted all his puzzle-piece laden propaganda for them to eat up and praise him for. He’s been incredibly quick to thank his supporters and put us in the backseat. Part of me believes he thought this would be good publicity and paint him as some kind of saint because his late Brother was Autistic. Here’s the initial tweet that started this all.
If you take the time to scroll through his twitter, you’ll see the calm before the storm. I took it upon myself to let his followers know that his actions are the opposite of commendable-by informing them that Autism Speaks is not a good organization. I don’t recall any of them responding to me.
I’m not sure how this benefits him. Perhaps it gives him a greater sense of purpose and believes that because he has a platform and an audience, that he could bring some kind of awareness to a cause he says is so important to him. We don’t need that. We can advocate for ourselves without hiding behind the guise of a hate group. There’s also better organizations to donate money to, like ASAN.
If you wish to add your opinion and let him know that we don’t need him to speak on our behalf, his social media platforms are:
Niantic, the makers of Pokemon GO have decided that it would be in their best interest to support Autism Speaks in Arizona. They are promoting this on their social media channels and will have a kids zone with various activities at the walk. I have a strong hunch that it is their PR Company, TriplePoint behind the tweets and support.
We are trying to let them know that they are, essentially, ignoring autistic voices–the very same autistic voices that benefit from, you guessed it, POKEMON GO!
They are ignoring us. They refuse and fail to respond to our valid criticism. As a whole, the #actuallyautistic community is outraged with very good reason. The big question looming is “How have they failed to do research?”. They, of all people/companies should know how to use google before they make a failed attempt at educating themselves on causes they choose to support.
If you agree with me and my peers and would like to support us, I would urge you to take some of the following actions:
We hear and appreciate all the feedback, as well as the other recommendations for Autism organizations that you’d love to see supported, so please continue to share some of the organizations you’re close to.
This is only applicable if you plan of cutting your ties to autism speaks and supporting a charity that is favourable by the #actuallyautistic communities standards. Otherwise, your actions will continue to hurt us and we deserve to be heard. You have been silent long enough.