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Before any opportunity is offered to me, I always do my research. I search up the positives and negatives so I can make an informed decision. That seems to be common sense; at least that’s what I thought.
Occasionally, i’ll do a twitter search for “Autism Speaks” to see what kind of propaganda is being perpetuated. I’ll usually see parents, this running app (CharityMiles) that donates to them and merchandise with puzzle pieces for sale.
Yesterday was a bit different. The last big rift between the Autistic community and an outspoken supporter of Autism Speaks would be the whole Niantic deal. The Makers of POKEMON GO decided it would be excellent publicity to partner with the Autism Speaks Run and have their own family fun booth. They were met with outrage and rightfully so. Pokemon Go gave some individuals a reason to get outside and engage. I wasn’t one of those people, but there were other reasons given that made it seem like the Autistic community embraced it–that is, until, they made an incredibly rash decision without any research.
So, back to yesterday, I noticed there was a gamer by the name of Ash or Clash With Ash (CWA) who was incredibly excited to share the news of his ambassadorship with Autism Speaks. His video was complete with puzzle pieces in the background. What a lovely touch.
We, the Actually Autistic community have been on it. We’ve let him know that this isn’t helping us – that it’s actually hurting us. Ash’s followers are commending him and don’t seem to be questioning him. I’m assuming they believed he did his due diligence and researched Autism Speaks before he went full out and posted all his puzzle-piece laden propaganda for them to eat up and praise him for. He’s been incredibly quick to thank his supporters and put us in the backseat. Part of me believes he thought this would be good publicity and paint him as some kind of saint because his late Brother was Autistic. Here’s the initial tweet that started this all.
If you take the time to scroll through his twitter, you’ll see the calm before the storm. I took it upon myself to let his followers know that his actions are the opposite of commendable-by informing them that Autism Speaks is not a good organization. I don’t recall any of them responding to me.
I’m not sure how this benefits him. Perhaps it gives him a greater sense of purpose and believes that because he has a platform and an audience, that he could bring some kind of awareness to a cause he says is so important to him. We don’t need that. We can advocate for ourselves without hiding behind the guise of a hate group. There’s also better organizations to donate money to, like ASAN.
If you wish to add your opinion and let him know that we don’t need him to speak on our behalf, his social media platforms are:
If you want to learn why Autism Speaks is so terrible, here’s a great list: A Roundup of Posts Against Autism Speaks
Niantic, the makers of Pokemon GO have decided that it would be in their best interest to support Autism Speaks in Arizona. They are promoting this on their social media channels and will have a kids zone with various activities at the walk. I have a strong hunch that it is their PR Company, TriplePoint behind the tweets and support.
We are trying to let them know that they are, essentially, ignoring autistic voices–the very same autistic voices that benefit from, you guessed it, POKEMON GO!
They are ignoring us. They refuse and fail to respond to our valid criticism. As a whole, the #actuallyautistic community is outraged with very good reason. The big question looming is “How have they failed to do research?”. They, of all people/companies should know how to use google before they make a failed attempt at educating themselves on causes they choose to support.
If you agree with me and my peers and would like to support us, I would urge you to take some of the following actions:
Please let Niantic know that even though @SARRC_tweet is who they are supporting, it’s still benefitting autism speaks.
Brand New Video!
…then you wouldn’t support Autism Speaks. April is the CRUELEST MONTH. Get prepared to go #RedInstead
I am an Autistic Woman.
I do NOT need to be cured.
I do not need to be eradicated.
I am not a burden.
I am not diseased.
I am not in crisis.
I am not represented by a puzzle piece or the colour blue.
I say NO to Autism Speaks and you should, too.
Want more information? It’s as simple as googling BOYCOTT AUTISM SPEAKS.
Disclaimer: This is my own opinion and should not reflect the brands or companies I have graciously partnered with.