Autism Speaks…..

…But apparently, they do not listen!

If you haven’t seen this, you should:

This whole thing is laughable at best.

I was interviewed by a local, community newspaper under the umbrella of black press media. The reporter was incredibly interested in my art, autism and my story.

I specifically told her about my disapproval of Autism Speaks and how their aim is to eradicate autistic individuals like myself. I told her how important this detail was in regards to my own journey.

Every so often, I find myself looking up the title of the article to see where it’s been posted.

To my surprise, a disgustingly sick feeling came over me, It has been posted on the Autism Speaks facebook page for all to see.

The VERY article that had this statement in it:

The goal, Wosk explained, is to help people become more educated about autism — that’s why she spends much of her online time being an activist for autistic people and protesting against organizations like Autism Speaks, which Wosk said spend more time looking to eliminate autism rather than support autistic people.

It had been up for 2 hours with over 40 likes and 2 shares.

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I don’t think any of those Autism Speaks supporters (or even Autism Speaks themselves) even bothered to read my article, because if they did, they wouldn’t have posted anything with an unfavorable mention.

This begs the even larger question of the importance of autistic opinions. I believe that when it all comes down to it, it’s that money rules and we don’t matter.

This was certainly not my first online encounter with this greedy “charity”. Nope. Autism Speaks Canada actually e-mailed me once trying to tell me all the things they do. TELLING me is important to note because they failed to read or even address anything I had said.

 

In conclusion:

Autism Speaks wants to replace and eliminate us. Our voices are not worthy or important to them.

#AutisticVoicesFirst

Autism Speaks. It's Time to Listen.

When I realized that Autism Speaks slogan was “It’s time to listen”, my heart sank.

I honestly felt like I broke in to a thousand little pieces that no one could pick up. It was the feeling of grief. The more I research, the more I realize how much Autistic voices matter.

The CEO of Autism Speaks is someone who has experience managing different health related foundations. Her name is Angela Geiger. As far as I can tell – She is NOT Autistic.

Autism Speaks Canada is headed up by Jill Farber and she has spent 15 years as a private consultant specializing in ABA. She is NOT Autistic.

It’s important for the verbal portion of the Autism community to speak up for not only us but for our nonverbal brothers and sisters. After all, we know best. This is who we are in every aspect of our being.

Wouldn’t it be nice for Autism Meetup groups and self-advocacy networks to have funding and get provided devices and tools to make life easier? Frustratingly enough, most companies need a “front” to do so. By that I mean a “charitable” organization with whom to “partner” with so it looks like they’re doing a DAMN amazing thing to benefit those who need it most. Why can’t they do it without the publicity or without a partnership? Money- simply put! Advertising is key. Looking good to those who are uneducated on the subject increases profit margins and a veil of “doing good”.

Let’s PUT #AutisticVoicesFirst