Niantic, Pokemon GO & Autism Speaks

Niantic, the makers of Pokemon GO have decided that it would be in their best interest to support Autism Speaks in Arizona. They are promoting this on their social media channels and will have a kids zone with various activities at the walk.  I have a strong hunch that it is their PR Company, TriplePoint behind the tweets and support.

We are trying to let them know that they are, essentially, ignoring autistic voices–the very same autistic voices that benefit from, you guessed it, POKEMON GO!

They are ignoring us. They refuse and fail to respond to our valid criticism. As a whole, the #actuallyautistic community is outraged with very good reason. The big question looming is “How have they failed to do research?”. They, of all people/companies should know how to use google before they make a failed attempt at educating themselves on causes they choose to support.

If you agree with me and my peers and would like to support us, I would urge you to take some of the following actions:

Sign the petition

-Tweet to:

Engage in this thread on Reddit

Read this document

UPDATE:

Please let Niantic know that even though @SARRC_tweet is who they are supporting, it’s still benefitting autism speaks.

 

 

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For Us Without Us

Brand New Video!

Autism $peaks Walk 2018.

This is a FUNNY (not) story. My Mother was doing some banking recently and overheard a Woman talking about an Autism walk coming up. My Mom asked if it was Autism Speaks and the woman didn’t know. Apparently it WAS autism speaks.

I took it upon myself to contact some notable sponsors who are ALL listed on their website.

This is the message I sent:

Hello Autism Speaks Canada Donor,

My name is Margaux Wosk and I am an outspoken advocate for Autistic individuals like myself. I wanted to take the time to tell you a little bit about the negative impact you are having on our community.

Autism Speaks is highly disliked and rather frowned upon by the #actuallyautistic community. We use the hashtag #boycottautismspeaks.

Autism Speaks wants to find a cure for us, they believe we should cease to exist and with their genetic testing and “research” –well, it’s all in the hopes that we should vanish off the planet. Eugenics, plain as day.

Only a very small fraction of the funds they raise goes to help autistic individuals, i believe 5 percent. The majority of it goes to research. We do not need a cure, we do not need awareness. We need acceptance and inclusion. Those are the most important things for us. Clearly, I would know since I believe individuals like us deserve respect.

We do not want a cure; we do not support ABA.

If you’re interested in better places to donate your funds, please consider the autistic self advocacy network or even our local Autistic Meetup Group. They are always in need of help.

To learn more about me, please check out http://www.navigatingjourney.com

I was recently featured in Black Press Medias’ online and press publications in regards to my art and advocacy and I spoke out against autism speaks. https://www.langleytimes.com/community/cloverdale-artist-finds-activism-for-autism-through-painting/

I would hope you would take this chance to respond to me and reconsider your support and financial contributions to autism speaks in the future.

Here’s a response I received from the top donor, milau who works for the Royal Bank of Canada:

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I do not know how you got my email but please do not email me.

Hm, I wonder how I did that.

 

 

Invalidated by a neurotypical person, silenced and falsely accused of spreading misinformation… This is terrible and these are the people that are raising money for us to fail to exist. I’m not surprised by the fact I was just spoken down to and told to not email this person. Awful.

Silenced again, this time by a local childcare provider:

 

 

Silenced ONCE AGAIN by a donor:

ASsilence

if they don’t want their names public then maybe they should consider that their names are publicly posted on the autism speaks website?

 

OUR VOICES SHOULD MATTER.

Please signal boost this if you can.

Autism Speaks is focused on “autism research and awareness.”

We need acceptance, not awareness.

 

Autism Speaks…..

…But apparently, they do not listen!

If you haven’t seen this, you should:

This whole thing is laughable at best.

I was interviewed by a local, community newspaper under the umbrella of black press media. The reporter was incredibly interested in my art, autism and my story.

I specifically told her about my disapproval of Autism Speaks and how their aim is to eradicate autistic individuals like myself. I told her how important this detail was in regards to my own journey.

Every so often, I find myself looking up the title of the article to see where it’s been posted.

To my surprise, a disgustingly sick feeling came over me, It has been posted on the Autism Speaks facebook page for all to see.

The VERY article that had this statement in it:

The goal, Wosk explained, is to help people become more educated about autism — that’s why she spends much of her online time being an activist for autistic people and protesting against organizations like Autism Speaks, which Wosk said spend more time looking to eliminate autism rather than support autistic people.

It had been up for 2 hours with over 40 likes and 2 shares.

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I don’t think any of those Autism Speaks supporters (or even Autism Speaks themselves) even bothered to read my article, because if they did, they wouldn’t have posted anything with an unfavorable mention.

This begs the even larger question of the importance of autistic opinions. I believe that when it all comes down to it, it’s that money rules and we don’t matter.

This was certainly not my first online encounter with this greedy “charity”. Nope. Autism Speaks Canada actually e-mailed me once trying to tell me all the things they do. TELLING me is important to note because they failed to read or even address anything I had said.

 

In conclusion:

Autism Speaks wants to replace and eliminate us. Our voices are not worthy or important to them.

I’m just going to leave this here.

New Podcast AND A New YouTube Series!

I have started a BRAND NEW Podcast called “Autistic Speaking”! Please listen here:

 

And my NEWEST Youtube Series “Margaux Talks Tea”

 

I would LOVE if you could let me know what you think of these two new ventures!

Margaux

I am Autistic. Hear me.

I am an Autistic Woman.

I do NOT need to be cured.

I do not need to be eradicated.

I am not a burden.

I am not diseased.

I am not in crisis.

I am not represented by a puzzle piece or the colour blue.

I say NO to Autism Speaks and you should, too.


Valuable links:

Want more information? It’s as simple as googling BOYCOTT AUTISM SPEAKS.

 

 

 

 

 

Keeping my values in check.

Photo on 2018-02-26 at 8.19 AM

I’m almost gritting my teeth as I write this. It’s always experiences that prompt me to go on these informative rants (if you want to call it that) and let it all flow.

I was recently contacted by someone who runs a charity event to benefit a local Autism Centre. She asked me if there was any way I wanted to be involved and immediately I got quite defensive and a bit angry. I should have controlled my emotions a bit better but it was seemingly obvious that she had not viewed any of my content prior to contacting me.

She told me they raised over 200,000 in the past for this centre with their different events. That’s all well and good until you see who one of the main sponsors is for the centre.

AUTISM SPEAKS CANADA.

Anyone who knows me or has viewed my content has probably seen how outspoken I am against them. Just look up “Boycott Autism Speaks”  on google and you’ll yield 266,000 results! There are plenty of reasons as to why I will not be involved in ANYTHING that is remotely linked to them. I have values and self-respect.

The conversation went like this:

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Do you really want to help the Autistic community? I’m always quite disheartened by the fact that so many of these opportunities are laden with no information OR misinformation. It makes getting the message of advocacy/activism/equality/rights much harder to convey.

If you want to donate funds, here’s some things you can do:

  • Contact your local Autistic Meetup group and ask what they need
  • Support Autistic individuals by purchasing their art or offerings
  • Make a donation to http://autisticadvocacy.org

If you are reading this and you have more ideas of what would be essential to my list, please leave a comment or get in touch.

Margaux

New Videos!

Disclaimer: This is my own opinion and should not reflect the brands or companies I have graciously partnered with.

Stand with us. #BoycottToSiri

The Autistic community and individuals alike have a hard enough time as it is. We struggle in areas, and we excel in other ways. One thing that is important is to have the unwavering support of everyone around us, including our parents.

It was brought to my attention on Twitter that a book existed: “To Siri with Love”, by an author named Judith Newman. In this book she chronicles her neurotypical views about being a Mother to her autistic son Gus.

Personally, I wouldn’t be at all comfortable with someone else telling my story. Regardless of what the relationship was. That’s just not okay with me.

A lot of things are terribly wrong with this book: The way she refers to an incredibly stellar autism advocate: Amythest Schaber  (“Manic Pixie Dream Girl”) is incredibly demeaning and is generally used to describe a character that only exists for the straight male protagonist in video games, etc.

There are also mentions of Eugenics where the author states she would like to get power of attorney, when her son is old enough, to have a vasectomy performed on him.

That’s honestly not all of it – but I urge you to visit twitter and search #BoycottToSiri

Educate and learn. Become an ally. Stand with US not against us.

It’s my story to tell and NO ONE ELSE.

 

 

For plenty of information, please visit:

 

This post is reflective of my opinions and does not reflect any of the brands or companies I have reviewed/worked with.